In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of the department of clinical neuroscience and co-directs the Neuropalliative Care Clinic. Dr. Miyasaki explains PSP and discusses what the care experience may look like for someone living with PSP and their loved ones as they search for comfort and peace.

Interested in getting involved with advocacy? Learn more here: https://www.brainandlife.org/get-involved/advocate/

Additional Resources

Former Representative Jennifer Wexton Breaks Barriers with AI-Generated Voice Amid PSP Battle

The Research Pipeline for Progressive Supranuclear Palsy

CurePSP

Other Brain & Life Podcast Episodes on Similar Topics

Family Stories: Diagnosing a Neurodegenerative Condition

The Future of Caregiving with Kat McGowan

Still Standing with Staff Sergeant John Kriesel

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Jennifer Wexton @repwexton; Dr. Janis Miyasaki @ualberta

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by songwriter, storyteller, and multi-instrumentalist Greta Morgan. Greta shares her journey being diagnosed with spasmodic dysphonia and how it has changed every aspect of her life, leading her to write her memoir, The Lost Voice. Dr. Correa is then joined by Dr. Brent Richardson, board certified Otolaryngologist (Ear, Nose, and Throat physician) with a specialty in Laryngology at The Bastian Voice Institute. Dr. Richardson explains what spasmodic dysphonia is, how it’s diagnosed and treated, and different factors that may affect each person’s experience with the condition.

This episode features music from throughout Greta Morgan’s musical career. To hear more, visit https://www.gretamorganmusic.com/.

Additional Resources

The Lost Voice: A Memoir

Remaining Positive After a Spasmodic Dysphonia Diagnosis

Dysphonia International

Other Brain & Life Podcast Episodes on Similar Topics

Billy McLaughlin on Life as a Musician with Focal Dystonia

Rogers Hartmann on Beating Dystonia

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Greta Morgan @gretamorgan; Dr. Brent Richardson @bastianvoiceinstitute

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by disability advocate, content creator, and speaker with a focus on accessibility, equity, and innovation in spinal cord injury research Jessie Owen. Jessie is a quadriplegic mother of twins and shares some candid insights on life, parenting, and navigating systemic barriers with humor and authenticity with Dr. Peters. Dr. Peters is then joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein. Dr. Hsieh’s discusses outpatient care for people living with spinal cord injury and related disorders and shares some exciting upcoming treatment options.

Additional Resources

Jessie’s Story

What is Spinal Cord Injury?

A Spinal Cord Injury Survivor Opens an Affordable Rehab Center

Other Brain & Life Podcast Episodes on This Topic

“Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206

Social Media:

Guests: Jessie Owen @itswheelyjess; Dr. Shelly Hsieh @montefiorehealthsystem

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD