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  • Episode 42: Unlimited Possibilities

    Episode 42: Unlimited Possibilities
    2024/11/22
    Kimberly talks with Paul Erway about overcoming not one but two major accidents, competing in wheelchair marathons in all 50 states, adaptive sports, and his work helping people regain their ability to drive with Superior Van & Mobility. Plus, Kimberly and Sam talk about all things Thanksgiving, especially the food. Spoiler alert, candied yams are gross. To learn more about Paul, visit https://www.paulerway.com Visit Superior Van & Mobility Be sure to follow the Advocado Press Facebook page Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript Welcome to Demand and Disrupt the Disability Podcast. Here we will learn to advocate for ourselves and each other. This podcast is supported with funds from the Advocato Press based in Louisville, Kentucky. Welcome to Demand and Disrupt a Disability Podcast. I'm your host, Kimberly Parsley. And I'm Sam Moore. How in the world are you today, Kimberly? I am doing great, Sam. How about yourself? Oh, loving every minute of being inside. This is one of those days you need a heater as we speak. You do, you do. It is chilly, chilly here in Kentucky today. Yeah, I don't think we've gotten any sleep yet, but you were telling me before we went on the air here that it was, it was sleeting a little bit in the Corvette city earlier today. It was sleeting a little bit. Yep. Just a little, not much and probably not for long, but yeah. And a little sleep freaked my dog out. She thought it was a whole sky is falling situation. So yeah, biscuit, you said she, she saw that felt a little bit of it and then turn around and I tailed it right back, right back inside. She didn't want any part of that. No part of that. Oh goodness. I don't blame her. So glad we're inside where it's nice and cozy. I am interviewing today. We get to hear from his name is Mr. Paul Airway and he's fascinating man. He's speaker. He has competed in 50 wheelchair races, wheelchair marathons, 50, 50, one in all 50 states. I think. Yeah. He wrote a book about it and he, he lives in Louisville and he also works with a superior van and mobility. So he's going to talk to us some about that. So fascinating stuff here today while we stay in where it's nice and warm, Sam coming to us from the North quail motel, correct Sam? That's right. Yes. That is the, the exact destination that I'm blessed to be coming to you from. We've got fresh coffee. I forget. Well, you, you, you do drink coffee because we've talked about that off the air. You like your, you like your coffee. Usually sugar it down a little bit. No, I do. I do. I do like a coffee. I like tea, basically hot chocolate, any hot drink. I'll take it. Anything with caffeine in it. I do like that too. Yeah, me too. Caffeine is something I got to have as well. Yes, exactly. And you talk about, about your, your coffee on a blabbing in the bluegrass, your personal podcast that you do about all things Kentucky. And I wanted to talk to you about this. You sing the opening song, the theme song for your podcast. I do. Yes, that is, that is me and knock on wood. I think everybody has survived my singing so far, but yes, I appreciate it. Yes. I just, I came up with the lyrics. I think it was during, during one of the, the sleepless nights I had before the, the podcast got cranked up. I'd had the idea for the show and I was just trying to ponder the lyrics. So I was wide awake one night and I'm pretty sure that's, that's when they, they came to me, but yes, I sing it. And my buddy, E.J Simmons on the keyboard, he, he provided the accompaniment, but yes, that's now. So did you, you wrote the lyrics yourself? I did. Uh huh. And so, I mean, you had to kind of compose it. Is that, is compose it like music composing something that you do? Yeah. Well, you know, I used to play piano, so I guess music is sort of in my blood. I sort of, I lost interest in piano a while back and sort of drifted away from it, broke my parents' hearts, I think. But, but anyway, I still, I enjoy music and you know, I don't, I don't maybe write songs on a, on a regular basis, but occasionally it's, it's something that I feel inspired to do. And, and I guess I did that particular time. That's awesome. And do you sing in like a choir or church choir or anything? Uh, not a choir per se. I do sing at, at my church, Three Plug for First United Methodist Church. Yes, I do sing there on occasion. And, uh, I'll do one or two songs here and there with the, with the accompaniment of, uh, you know, E.J, E.J Simmons who leads music in our early service, or sometimes I'll roll with Nicolai Peake who leads music in the traditional ...
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    46 分
  • Episode 41: Cohosting with Sam Moore, plus all about Medicaid waivers

    Episode 41: Cohosting with Sam Moore, plus all about Medicaid waivers
    2024/11/10
    Chances are, you or someone you know would be a prime candidate for the Medicaid Waiver Program. Sam Moore interviews Sarah Duncan, Director of Waiver Services with Green River Area Development District. Sarah discusses Eligibility requirements and the process of becoming enrolled. This episode originally aired on Sam’s all-about-Kentucky podcast, Blabbin’ in the Bluegrass. Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript Welcome to Demand and Disrupt, the Disability Podcast. Here we will learn to advocate for ourselves and each other. This podcast is supported with funds from the Advocato Press based in Louisville, Kentucky. Welcome to Demand and Disrupt, a Disability Podcast. I am your host, Kimberly Parsley, and today I am here with someone very special. I am here with Sam Moore. How are you, Sam? Well, I'm glad somebody thinks I'm special, Kimberly. I'm doing great, and it's an honor to be back here on Demand and Disrupt for my second time. Yes, this is your second time. Now, for those who might not remember, Sam is a, well, he's a WKU graduate. That's the most important thing. Go tops. Go tops. He's from Henderson, Kentucky, and he does a podcast called Blabbing in the Bluegrass, which is one of my go-to podcasts that I listen to every week. Love it. If you haven't already, you should check that out. And a couple of weeks ago, as I was listening to Sam's podcast, he did an episode on Medicaid waivers. So, Sam, tell me how that came about. Tell me about that episode. Well, you know, I try to keep an open mind to pretty much everything on my podcast as long as there's a Kentucky connection there. And Sarah Duncan is the lady's name. She was actually my special guest. And I enjoy interviewing health care professionals that have made a difference in people's lives here in the state from time to time. And Sarah is the Director of Waiver Services with GRAD, which is a Green River Area Development District. I know you're somewhat affiliated with GRAD down there in Bowling Green, aren't you? That's correct. That's the Barron River Area Development District. So same kind of thing, different place. Yeah, same kind of thing. So I thought it'd be cool for her being, you know, because that program, the waiver program has really been a godsend to a lot of people. So I thought I would ask her to come on and talk about the different types and the qualifications. And yeah, she was great. It was, it was, I mean, it was so informative, just so much information for me. I work at the Center for Accessible Living and stuff I didn't know and just also for our listeners. So that's why what you're going to hear here shortly is just a re-airing of Sam's episode that he did with her. I always enjoy hanging out here in the podcast world with Kimberly. And I've even had her and Lisa McKinley on my show and we talked about there. So we've had a few joint efforts going on, but like she said, my podcast is blabbing in the blue grass. And I like to feature restaurants and musicians from Kentucky, authors, athletes. Like I said, I try to keep an open mind to pretty much everything. You know, as long as there's a connection centered around Kentucky there. And I've also done educators and health care professionals. And so I've got the podcast that I do and I also here in Henderson host trivia at a couple of different pizza places. So Kimberly, if you're ever in Henderson on a Monday or a Thursday night, chances are I will be hosting. Monday nights I host at Rock House on the River and Thursday nights I host at a place called Fire Dome here at Henderson. So Kimberly, I think you'd like both places if you like pizza and wings, which I'm sure you did. I tell you it pub trivia. That just sounds like that sounds like so much fun. And people take it very seriously, don't they? Oh yeah. You'd be surprised even though they may be friends of that are, you know, talking and mingling amongst themselves before the game, but then they split up and form their teams and they're, they're competitive during the games. And you, you emcee that, right? Right. And I come up with the different questions each week, which is a challenge, but a fun challenge that I enjoy. And so how many questions do you have to come up with? Well, there's four different rounds and they're, they're generally random categories each week and then four questions in each round. And it's, it's, it's random, random trivia categories pretty much. It's a random knowledge. I'll have four different ones. The only time we ever have like an overarching theme is like on the trivia before ...
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    59 分
  • Episode 40: Unity is the Way Forward

    Episode 40: Unity is the Way Forward
    2024/10/25
    Carissa Johnson and Keith Hosey interview Mark Johnson, a long-time powerhouse for change in the disability community. Mark and the Disability Caravan recently visited Carissa at the Murray office of the Center For Accessible Living. He talks about the early days of ADAPT, where the movement is now, and gives ideas for how we can get where we want to be. To learn more about Mark Johnson, visit https://newmobility.com/person-of-the-year-mark-johnson/ Learn more about the Latonya Reeves Freedom Act Visit the ADAPT Virtual Museum https://drive.google.com/file/d/1qANak9Mcc4EUhJeckid9eDDH0VAXttj1/view?usp=sharing" title="Arthur at demonstration credit Tom Olin" /> Learn more about the Disability Caravan Watch the movie, When You Remember Me Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: Welcome to Demand and Disrupt the Disability Podcast. Here, we will learn to advocate for ourselves and each other. This podcast is supported with funds from the Advocato Press based in Louisville, Connecticut. Thank you for joining us. My name is Kimberly Parsley and I am joined today by Carissa Johnson. You all have heard her before. She's been on the podcast as an interviewee and an interviewer, and that's what she's doing today. She is, she conducted our interview today. So Carissa, tell me who we're going to be hearing from. We are going to listen to Mark Johnson. He is not one of the original 19 of ADAPT, but he joined the organization not long after they started. So he is kind of one of the OGs a little bit, and he's been involved in disability advocacy since the 1970s. You'll hear a lot about what he did with transportation and the city in Atlanta for, that happened right before the ADA was signed and just so many different things. He had a plethora of information. So I was super excited and lucky that I got to ask him to do this. Oh, wow. Okay, great. So tell me, you mentioned ADAPT and we have talked about ADAPT before. So tell us again, what ADAPT is. ADAPT is a disability activist organization. It started as a movement to help individuals fight transportation issues on buses. And Mark will talk about some of that. Once that issue was sort of resolved through the ADA and the civil rights, they have now moved on to home and community-based care and wanting that to be a civil right for folks. So they do things like demonstrations and sit-ins and activism for individuals with disabilities. And they actually do have an online museum. They started in the 70s, so you can see articles and different things that they've done. I would encourage people to check it out and I'm sure we can link it in the show notes. Absolutely. That's exciting. And now we have a chapter of ADAPT here in Kentucky, Keith Hosey, who joins you in the interview. He started the Kentucky chapter of ADAPT and I believe they've already, they've been doing some stuff, right? They have done one demonstration, I believe, and they hope to do more. They got individuals from the national organization to come down and do the training. And as part of the training, I think it was this past year, they actually do a demonstration. So it's more than just sitting in a classroom and here's ADAPT and here's what they do. No, they throw you in the deep end. They are doing an administration right then. So Kentucky does have a chapter now, which I'm really excited about. That is awesome. Mark talked about, I hate to steal his thunder, but I'm a fan girl during this episode. He talked about, you know, how until there's an emotional link, there's not any room for intellectual change and that's what ADAPT tries to appeal to. It tries to appeal to the emotions of folks and you know, it's not like they started not doing their traditional channels of talking to city representatives and state representatives and trying to make the changes that way. They did those things that, you know, sometimes we've seen in our history, it takes more than that and that's what ADAPT does. That's awesome. And you met Mark, how? How did you meet him? I really fell into my meeting with Mark. I got a call from Patricia Puckett. She used to work at a disability independent living center in Florida and she actually retired in Murray. So she and I became friends once she moved here. She donated some stuff to us, we talked on different things, but she says, hey, I have this friend and they're bringing this caravan to Murray and actually they're spending the night with me. She said, this caravan is all about disability justice and history. Would you like to have an event at your office? And I said, heck ...
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    57 分
  • Episode 39: Changing the Narrative

    Episode 39: Changing the Narrative
    2024/10/07
    Kimberly talks to Luda Gogolushko, founder of Includas Publishing, about the importance of disability representation in media. They discuss the evolution of how disabled people are portrayed in media, as well as the possibilities and pitfalls of AI for the representation of people with disabilities in media. Visit Includas Publishing’s offerings at Includas.com Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript Welcome to demand and disrupt the disability podcast. Here we will learn to advocate for ourselves and each other. This podcast is supported with funds from the Advocato press based in Louisville, Kentucky. Hello everyone. And thank you for joining us on demand and disrupt. I am your host, Kimberly Parsley and I'm Lisa McKinley. And today my interview guest is Luda Gogoluszko and she is the founder of Include Us Publishing, which is a publisher whose goal is to increase media representation of people with disabilities. And she is from the University of Oregon. So I'm very excited about that. I'm excited because it's October, which is the beginning of my favorite season, which is pretty much the whole last quarter of the year, because I love Halloween and then I love Thanksgiving and I even love the holidays. So it's amazing. It's like the best month of the entire year. It is it. I absolutely agree. It's like, I think it's because finally we're getting some fall weather in Kentucky. At least we can be convinced that there might be some fall weather coming. Yeah, I love it. Are you a pumpkin spice person? Are you anti that? I mean, it's it's it's OK, maybe a little and some coffee, but all the pumpkin spice cereal and pumpkin spice, baked beans, all like pumpkin spice, everything. It's like some of it's a little weird. I'll give you that. I'll give you that. But I've already gotten my pumpkin spice cream cheese to go on my bagel. So that sounds like it would work. I got a got my new decor. I got a well, I think crystal skull. I'm sure it's just like glass, but it's a clear skull and it apparently has glitter in it. So if you turn it on, the glitter sparkles and then there's a candle sticking out of the top. If you want to go for a little spookier sort of thing, Michael thinks it's the absolute tackiest thing that he's ever seen. But we love it. We love it. It can't be as tacky as what we saw at Lowe's the other day. It was a 10 foot animatronic skeleton for your yard that was $500. It was that Lowe's or Home Depot because the 12 foot Home Depot skeleton is like a thing. It's like iconic now. Maybe it was Home Depot. No, it's like a thing. I mean like people, and then they're so expensive that I've seen people like keep them out all year and put like, you know, like a Santa Claus hat on them in December and then like bunny ears, you know, but yeah, but I'm not paying for that. I'm judging you right now. I'm sure you are. It's fine. Hey, my tacky knows no bounds, none at all. We have a little like two foot one to keep in the house. His name is Trevor because the kids, you know, to thrill, his name is Trevor, you know, that kind of thing. So the new, the new, the new school is his name is Bob because Bob is the name of a skull that is in the Dresden files, which is a series about a wizard in Chicago. And there's a talking school whose name is Bob. So the new school is named Bob. So what, what do you have? Do you, do you, I bet you do classy holiday decorations, don't you? I have a brown hand spun pottery bowl with little pumpkins and, and pine cones in it, but you know, fall wreath, but that's about the extent. See, you're like pottery barn and I'm like, I don't know, spirit Halloween just threw up in my house or something. So I wish I was more into decorations, but I can set you up with some tacky Halloween. I really can. We did have this witch that would like it screamed and cackled and would like it was attached to the bucket with the candy in it, you know, and it would grab the candy out and it was so spooky. I threw it away. I thought it was demonic. Alex brought it home. I'm like, this thing is scaring me. So we have outside, we have like the led lights around the back porch and not, not, not like holiday or anything. Just, uh, there's just the led strip of lights around the, our screened in porch. And Michael was out there doing something with the dog. And because it's, you know, Halloween is coming, I, I turned them because they're Alexa enabled. I had to whisper her name or else, you know, uh, I'll summon her, but so I changed them. I had Alexa change them to crimson, change the color of the lights...
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    44 分
  • Episode 38: A World of Feeling

    Episode 38: A World of Feeling
    2024/09/19
    Kimberly talks with Danielle Burton, Communications Accessibility Editor for the American Printing House for the Blind. They talk sports, public transportation woes, and haptics, which is a standardized system for providing and or receiving visual and environmental information as well as social feedback via touch signals on the body. For more about haptics, visit: Helen Keller Haptics Video Series. iCanConnect, also known as the National Deaf-Blind Equipment Distribution Program. Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: Welcome to demand and disrupt the disability podcast here. We will learn to advocate for ourselves and each other This podcast is supported with funds from the Advocato press based in Louisville, Kentucky Welcome to demand and disrupt a disability podcast. I am your host Kimberly parsley and I'm Lisa McKinley. Thank you for joining us Yes, thanks. Everyone. We are interviewing or I'm interviewing today Danielle Burton. She is the Accessible communication accessibility editor for the American printing house for the blind and That's a mouthful but what it is is she's the person who they have a lot of people with people who are blind and deafblind and such in at American printing house and so she's the person who edits all the documentation and things they send out to make sure that it's accessible for screen readers and the like and I Want my own personal communications accessibility editor. What about you? So do I? And I want I want every company to have an editor Like wouldn't that be cool? Yes, that where they have to make sure that all the stuff they put out is accessible. That would be yes That would be equally awesome. So Danielle Burton is Wonderful, and she's amazing and you're really gonna enjoy my interview with her. She told me something about a I Don't guess you call it a language but a form of communication called haptics. And so basically what this is is where someone will will give you signals on the body to convey information about like the environment or social feedback or something like that like like if say your boss walk you're given in a presentation and your boss walks in and like that might be information that would be good for you to have but if you're blind you Can't see that right? so a person like assisting you would be up there and would like Tap on your back in such a way as to let you know that hey, the boss just walked in Wow, that would come in really really handy, wouldn't it? It would It really would and I I can't really figure out if it's I think there's an aspect to it That's formalized like I think there are certain things that mean certain colors or or things you know, I think there is a it's not formalized but standardized words that standard symbols and things and but some of it's not some of it's just cues or things that you would have worked out and of course it would she mentions like where they would like draw a thing or tap the signal or whatever on your back, you know, cuz that wouldn't interfere with what you're doing or I've seen this example of like I bet you've done this like where you're trying to get somewhere. So you open your hand Flat and someone kind of draws like a map on your palm Yes, not not an ink but just you know, like with their finger, you know what I mean? Yeah. Yeah yeah, that would be so helpful in so many situations like, you know, like if I'm Talking about my kids and they walk in the room and I don't know it Your kids are in here. Yeah, that's that's a perfect example exactly I'm sure it's used for much more important things but yeah, I could see how in everyday little circumstances and we were just talking about how quiet my husband is and Kind of when we're out in public, he's super quiet and he's super quiet. Yeah. Yep I can't even let me know when he's a real hill just kind of rub his finger on the back of my arm and I know that he's Rejoined me wherever we are. So I mean, I guess that's maybe a form of haptic. I don't know. Yeah I think that that may be between you all that's kind of a non-standard form I know with me and Michael, you know if I'm walking sighted guide And I'm holding on to his uh, I'm holding on to his arm and let's say somebody says something Ridiculous, I guess he has this sign He'll kind of like he'll kind of like tap on my fingers where my hand where my arm My hand is on his arm and that tap means essentially What a load of crap, you know, it's like this secret eye roll It's like the ADA compliant eye roll you guys have Like because if I mean if people could see you know You look around and...
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    50 分
  • Episode 37: Making a Way

    Episode 37: Making a Way
    2024/08/29

    Lisa talks with Rebecca Bridges about deciding to leave her successful career and homeschool her children, as well as what it’s like to be part of a blind couple raising a family together outside Washington DC.

    Check out the newly released audio version of Franke James’s book, "Freeing Teresa" on Audible.com and on freeingteresa.com.

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.

    Find out more at https://demand-and-disrupt.pinecast.co

    This podcast is powered by Pinecast.
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    43 分
  • Episode 36: Disability ambassadors, we salute you!

    Episode 36: Disability ambassadors, we salute you!
    2024/08/11

    Kimberly interviews disability advocate, Tyler Levy, and Lisa interviews Aaron Lammers, who gives his own first-hand account of living with autism. Plus, Lisa and Kimberly talk about Mattel‘s new line of disability Barbie and Ken dolls.

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.

    Find out more at https://demand-and-disrupt.pinecast.co

    This podcast is powered by Pinecast.
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    43 分
  • Episode 35: Federal rule change increases protections for people with disabilities.

    Episode 35: Federal rule change increases protections for people with disabilities.
    2024/07/26

    Kimberly talks with Justin Jeter, public policy coordinator for the Commonwealth Council on Developmental Disabilities, about exciting changes to Section 504 of the Rehabilitation Act. Read the full press release here.

    Lisa and Kimberly want to hear from you. Email them at demandanddisrupt@gmail.com

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.

    Find out more at https://demand-and-disrupt.pinecast.co

    This podcast is powered by Pinecast.
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    34 分