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  • Episode 58: CAL Conversation: Navigating Healthcare as a Person with a Disability

    Episode 58: CAL Conversation: Navigating Healthcare as a Person with a Disability
    2025/07/13
    Kimberly talks with Carissa and Keith about dealing with doctors, medical equipment, and the healthcare establishment as people with disabilities. They discuss a recent study that shows disabled people are discovering cancers at later stages because of the inaccessibility or difficulty of early cancer screening procedures for people with disabilities. Plus, Sam and Kimberly talk about disability pride month. Below is an article that talks about the reason for celebrating disability pride. thearc.org/blog/why-and-how-to-celebrate-disability-pride-month/ Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Kimberly: Welcome to Demand and Disrupt, a disability podcast. I am your host, Kimberly Parsley. Sam: And I'm your co-host, Sam Moore. Kimberly, we are officially in the dog days of summer. Kimberly: It is so hot here, isn't it? Sam: It's so hot in Kentucky, anywhere around Kentucky. Doesn't really matter where you are. There's no relief at this point. Kimberly: None at all except air conditioning. Sam: Yeah, exactly. Which luckily you and I are in some knock on wood there. Kimberly: I tell you, I tell you, we've been without air conditioning a couple of times, and it is miserable. You and I were talking people in Kentucky. We live here for the spring and the fall, right? Because it is just beautiful in spring and fall. Sam: No better place to be those two seasons. Kimberly: Nowhere. I mean, it is absolutely gorgeous. But, man, it is hot in the summer and it's summers are so long. And then lately, the winters have been cold and either. Sam: Yeah, you definitely get both extremes here. Kimberly: You really do anymore. I mean, even even in the winter, it's even if it's warm, it's rainy, you know. Sam: And so you kind of got to take the good with the bad. But we definitely get four seasons, unlike Florida, where I think they get like two. Kimberly: They get like I think they get like one and then a week or something else. Sam: Yeah, a week or something else. That's probably about right. Anybody from Florida, if you're listening, correct us if we're wrong. Kimberly: Do tell us if we're wrong. Sam: Email demandanddisrupt@gmail.com You know, we've been we've done the vacation thing there. Kimberly and I both have, but just not spent long durations of time there. Kimberly: No, only been there during tourist season. And, you know. Sam: Yeah, well, we started going on fall break before fall break. You know, really caught on. And now everybody goes on fall break. If you have kids, you know. Kimberly: Yeah, you go on fall break. But now you get hurricanes during fall break. Sam: Well, this is true. Yeah. And we used to go to get away from people from Henderson. But now, you know, 70 percent of Henderson go south. Kimberly: Yeah, exactly. Sam: We we we'd we'd be diving right into most of them if we went down to the coast. Kimberly: Exactly. Exactly. But we are in July and it is miserable here. But it is Disability Pride Month. Sam: That it is. Yes, indeed. Kimberly: So I thought, well, today, my guest is for the interview segment is Carissa Johnson and Keith Hosey. And we are going to talk about navigating the health care system as a person with a disability. So real, real fun stuff there coming. Sam: You know, really informative. It's it's, you know, a useful topic. Kimberly: Oh, it's a great conversation. I mean, we had a great conversation. But yeah, but before that, I thought that you and I might just dive into the controversial topic. Sam: I think you'll say dive into the pool. Kimberly: No. Well, that would be better. But that'd be great. The controversial topic of Disability Pride Month and how it's celebrated. Now, Disability Pride Month is celebrated in July because in July, I believe, July 26th of 1990 is when the Americans with Disabilities Act was signed into law. And that really changed the landscape of disability. And sort of since then, people have kind of made disability pride. We celebrate disability pride the whole month. Sam: But hard to believe that was 35 years ago. It's almost to the day. Kimberly: Yeah, it does. But, you know, people have their their feelings about disability pride. So, Sam, what I mean, my feelings are well known on this topic. What and on most topics, to be fair. But so where do you where do you stand on the whole is disability? You should be ...
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    55 分
  • Episode 57: Breaking Through Barriers to Conquer College

    Episode 57: Breaking Through Barriers to Conquer College
    2025/06/28
    She first experienced vision complications at the age of 20, but never let this stop her from pursuing her aspirations...and we're beyond excited to welcome her to this episode of “Demand and Disrupt”!! She is Stephanie Levin of New Jersey, who holds titles ranging from PHD candidate, to student affairs assistant, to even recently published author! Her debut is entitled “Picking Up the Pieces: Finding My Way as a Visually Impaired Woman in Higher Education”. Join Stephanie as she describes the onset of her partial vision loss, the inspiration behind her book, and the content we'll be treated to between its covers. She'll also explain the PHD program in which she's enrolled, detail her Student Affairs position at Rowan University, and explain the means by which we can purchase her book. To learn even more about Stephanie Levin, feel free to email her at levins@rowan.edu or visit her website at stephanieanlevin.com Visit the article Sam and Kimberly discuss at the beginning of the show at https://www.americanbar.org/groups/diversity/disabilityrights/news/why-disabled-people-self-accommodate/ Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Sam: Welcome one and all to Demand and Disrupt, a disability podcast. We are so pleased today to be joined by a lovely lady named Stephanie Levin. She is a newly published author documenting her recent disability and vision loss in a book entitled, Picking Up the Pieces, Finding My Way as a Visually Impaired Woman in Higher Education. So we will be chatting with Stephanie in mere, mere moments. But right now I'm pleased to bring in my partner, Ms. Kimberly Parsley. Kimberly, how are you? Kimberly: I'm doing very well, Sam. Thank you. I listened to your interview with Stephanie and a wonderful job. Lots, lots of talking points there. I know we can. Most of us listening to this podcast know what that's like at the beginning of your disability journey. Come into terms with that. It's tough, isn't it? Sam: Yeah, it is tough. And, you know, I've been blind. Well, the first time we discovered my blindness, it was seven months old. But this lady, Stephanie, she first experienced vision loss at the age of 20, which was not that long ago. So, you know, it was new terrain for her while she was going to college. But it didn't didn't stop her from pursuing her goals and and aspirations. But yes, those in our audience who are in the early stages of their disability, whatever that disability may be, they ought to be able to identify with Stephanie for sure. Kimberly: Absolutely, absolutely. It's it's it's tough. And, you know, sometimes sometimes you go through a thing and you think you're done and, you know, disability creeps up again. It's it's not always a straight line, is it? Sam: Yeah. Even when you think maybe it's over and done. Sometimes it creeps back or or sometimes other challenges, other disabilities present themselves. Kimberly: Yeah. You know, what is it they say about disability? It's the one minority that we could all join at any time. Sam: Oh, I've never heard that, but I like it. Kimberly: Yeah, it's true. Sam: And if we if we don't have a disability, chances are we know somebody who does. Kimberly: Or or we could. I mean, you know, Sam: Yeah, maybe that's true. Maybe we have a disability and don't know about it yet. Kimberly: Yeah. You know, things can happen. So, yeah, it's interesting to read people's initial their early stages of that of that journey. And hers was in higher education and fighting for for what she needed and coming to terms with needing those accommodations. Sam: She's a she's a Jersey girl. I guess, as they say at their joys, a girl, they always have their unique ways of saying things. (Laughter) Sam: But anyhow, yeah, as we mentioned, I believe, you know, what's history? My first interview from Jersey and maybe not my last. But, you know, she spent her life in the in the Philly area. And, you know, we had a nice conversation off the air about Philly cheesesteak sandwiches because I am a big fan. Kimberly: Oh, are you? Wow. Sam: Philly cheesesteak sandwiches. (Laghter) Sam: And I don't know about you, Kimberly, but I definitely love them. And they say that you haven't had a Philly cheesesteak sandwich done right until you've had one in Philly, which is that right? Kimberly: Is that right? Not me, me ...
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    1 時間 2 分
  • Episode 56: Innovative Programming to Reach all of Kentucky

    Episode 56: Innovative Programming to Reach all of Kentucky
    2025/06/14

    Kimberly talks with Dr. Patrick Kitzman, professor of Physical Therapy at University of Kentucky, about assistive technologies and some innovative programs he’s involved with to help get assistive technology to the people who need it most across all of Kentucky.

    Below are links to some of the programs mentioned in the show:

    Various Assistive Technology Resources Centers (ATRC) in KY

    Kentucky Appalachian Rural Rehabilitation Network (KARRN)

    Appalachian Center for Assistive Technology (ACAT)

    Project CARAT durable medical equipment refurbishing and reutilization program

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.
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    40 分
  • Episode 55: Belief in the Best Life Possible

    Episode 55: Belief in the Best Life Possible
    2025/06/01

    Kimberly and Leigh Anne McKingsley, Senior Director of Disability & Justice Initiatives of The Arc of the United States, talk about the death of Victor Perez at the hands of police, what training initiatives are underway to prevent such senseless tragedies in the future, and what help is available to people with disabilities and their family members when it comes to interacting with the criminal justice system.

    Thearc.org

    To hear Sam’s recent interview with Lisa Mckinley

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.
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    44 分
  • Episode 54: CAL Conversations: The Cost of Disability

    Episode 54: CAL Conversations: The Cost of Disability
    2025/05/17

    In this first CAL conversation, Kimberly and Carissa talk about the cost of disability. They discuss wheelchairs, kitchen gadgets, and everything in between.

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.
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    43 分
  • Episode 53: Follow me, I’ve got this.

    Episode 53: Follow me, I’ve got this.
    2025/05/03

    Kimberly talks with Annie Lapidus about the joys and challenges of being in an immersive theater production about blindness, the importance of connection, and living with a rare disease.

    To learn more about Von Hippel-Lindau, visit vhl.org

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.
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    55 分
  • Episode 52: Back Doing Something I Love

    Episode 52: Back Doing Something I Love
    2025/04/20

    These days, virtually anything is possible for individuals with disabilities, and outdoor recreation is no exception! Here to prove just that is this week's guest, Greg Traynor, who hosts the “Accessible Hunter” podcast, along with his partner Mike Hudson. Greg continues to reap the benefits of the great outdoors, and is an active hunter just as he was prior to becoming a wheelchair user. Grab a comfy seat (preferably on the front porch swing) as Greg describes his extensive hunting background, explains the incident which caused his paralysis, and details the specialized equipment he uses to effectively hunt. He also tells us how he formed a friendship with podcast cohost Mike, discusses the general purpose of the show, and enlightens us on some of the disabilities that have been represented among his guests. Below our links to visit The Accessible Hunter podcast and Facebook page.

    https://open.spotify.com/show/63T8O75wc9p6hN2FlAOslG https://www.facebook.com/Accessiblehunterpodcast/

    Thanks to Chris Ankin for use of his song, “Change.”

    The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here.

    Be sure to follow the Advocado Press Facebook page

    Visit Appalachian Assistive Technology Loan Fund for assistance.

    Visit Moving Forward, the Advocado Press blog.

    Send comments and questions to demandanddisrupt@gmail.com

    Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living.

    You can find the transcript in the show notes below when they become available.
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    48 分
  • Episode 51: Who gets to decide what is reasonable?

    Episode 51: Who gets to decide what is reasonable?
    2025/04/06
    Kimberly talks with Dr. Kristel Scoresby, assistant professor of social work at the University of Kentucky. Dr. Scoresby is deaf, and they discuss cochlear implants, accommodations, and universal design. Visit Dr. Scoresby‘s ongoing website project at Hearinglossimpact.com Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript AI Voice You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Kimberly Parsley Welcome to Demand and Disrupt, a disability podcast. I'm your host, Kimberly Parsley. Sam Moore And I'm your co-host, Sam Moore. Kimberly, it is hard to believe it is already April. Kimberly Parsley It is, it is hard to believe. Sam Moore And it's spring and all the pollen is blowing around. Kimberly Parsley It's, yes, it's dusty and yellow out there, I hear. Sam Moore And as we currently speak, the floodgates continue to be open, but, uh, you know, we're, we're staying high and dry so far. Me in Henderson, Kimberly in Bowling Green. So that's right. That's what counts for us at least. Kimberly Parsley We are, we, we are doing well right now. Sam Moore So that is, that is great. Um, we hope everybody else is staying above water too. Kimberly Parsley Indeed we do. So I have a wonderful guest today. Her name is Dr. Kristle Scoresby. She is an assistant professor in the college of social work at the university of Kentucky, and she is also deaf and she talks about cochlear implants and she talks about her research and applying what she's learned in her research to her social work. So a wonderful, wonderful conversation I have with her and you know, something she said got me thinking, as you do. And this, this episode I entitled “Who gets to decide what's reasonable?” And you know, we talk about that phrase reasonable accommodations and so Sam, I'm wondering, has anybody ever in, in your time, either as a student or an adult working or, or anything anywhere questioned the reasonableness, if that's a word Sam Moore if it's not a word, we can make it, we just made it a word of a request for accommodations that you made. I mean, heck with the Webster's dictionary. We're going to have the Moore-Parsley dictionary here. Keep your ears peeled eyes open for that folks, but anyhow, yes, everybody's interpretation of reasonable seems to be different and I'll tell you my, my college experience at Western Kentucky University was overall great. I'd say 98% of my professors were at least decent, but there's, there's always one or two bad apples. My worst apple was my freshman year. It was a broadcasting class. It was not the intro, but the next one up, which was 201. I think they kind of considered that a weed-out class at the time. Cause you know, if you, if you got through that, you most likely stayed in the major and then did well. But if you struggled with that class, you know, chances are you were, you didn't try to repeat it too many times and you just switched your major. But anyway, I had a, we had to watch a video of choice and we were given a list of several to choose from, and we had to write a report about the video. So the first one we tried to watch, um, it was, uh, it was too visual in nature, and my program assistant, Trish, she was trying to watch it with me and describe things for me, but she was like, finally, yeah, she goes, you know, this particular video saying, it's, uh, it's going to be hard for you to get much out of without being able to see it. And I said, well, I kind of think you're right after about 30 minutes of this thing. So my professor made another suggestion of a video that was more doable. And it was, but it was late in the game when we got access to it. So, I watched the film, um, you know, I asked for a little extra time on the report since we were late in getting our hands on it and, um, she, uh, she said, well, if I don't have it from you, uh, by the end of the day, I'm going to give you a zero on the paper because you've known about it forever. So, uh, I went home, well, my dorm and worked my tail off on this paper. I had it done about three the next morning. So the next day I slipped it under her office door while she wasn't there. And, uh, I think I knew she wasn't going to be there that day. So I thought, well, you know, for all she knows, it could have been there the very night after we talked, so we'll be okay. And so I, uh, next class period, I went up there to her. I said, uh, I ...
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    58 分