• Ep. 10 - You Are Not Alone: A Family with EDS

  • 2022/11/17
  • 再生時間： 35 分
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Ep. 10 - You Are Not Alone: A Family with EDS

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  • Kristin Means and her son, Braeden, talk about their daily life with Ehlers-Danlos syndrome. Kristin played collegiate softball and was an active child her whole life, when her EDS pain became overwhelming, she had to modify the way she thought about exercise. To date she has had 38 surgeries! Braeden was a child constantly in pain, but put on a brave face for doctors, causing them to push off a much-needed surgery. He now finds joy in singing and exercising with his family. Yoga, swimming, or walking together is what improves the mental health of this family, decreasing their physical pain. After finding the Bobby Jones Foundation, they feel that they are no longer alone in their battle.
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Kristin Means and her son, Braeden, talk about their daily life with Ehlers-Danlos syndrome. Kristin played collegiate softball and was an active child her whole life, when her EDS pain became overwhelming, she had to modify the way she thought about exercise. To date she has had 38 surgeries! Braeden was a child constantly in pain, but put on a brave face for doctors, causing them to push off a much-needed surgery. He now finds joy in singing and exercising with his family. Yoga, swimming, or walking together is what improves the mental health of this family, decreasing their physical pain. After finding the Bobby Jones Foundation, they feel that they are no longer alone in their battle.
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