Episode 58: CAL Conversation: Navigating Healthcare as a Person with a Disability

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Episode 58: CAL Conversation: Navigating Healthcare as a Person with a Disability

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Kimberly talks with Carissa and Keith about dealing with doctors, medical equipment, and the healthcare establishment as people with disabilities. They discuss a recent study that shows disabled people are discovering cancers at later stages because of the inaccessibility or difficulty of early cancer screening procedures for people with disabilities. Plus, Sam and Kimberly talk about disability pride month. Below is an article that talks about the reason for celebrating disability pride. thearc.org/blog/why-and-how-to-celebrate-disability-pride-month/ Thanks to Chris Ankin for use of his song, “Change.” The book "A Celebration of Family: Stories of Parents with Disabilities." is available from Amazon here. Be sure to follow the Advocado Press Facebook page Visit Appalachian Assistive Technology Loan Fund for assistance. Visit Moving Forward, the Advocado Press blog. Send comments and questions to demandanddisrupt@gmail.com Demand and Disrupt is sponsored by the Advocado Press and the Center For Accessible Living. You can find the transcript in the show notes below when they become available. Transcript: You're listening to Demand and Disrupt, the podcast for information about accessibility, advocacy, and all things disability. Kimberly: Welcome to Demand and Disrupt, a disability podcast. I am your host, Kimberly Parsley. Sam: And I'm your co-host, Sam Moore. Kimberly, we are officially in the dog days of summer. Kimberly: It is so hot here, isn't it? Sam: It's so hot in Kentucky, anywhere around Kentucky. Doesn't really matter where you are. There's no relief at this point. Kimberly: None at all except air conditioning. Sam: Yeah, exactly. Which luckily you and I are in some knock on wood there. Kimberly: I tell you, I tell you, we've been without air conditioning a couple of times, and it is miserable. You and I were talking people in Kentucky. We live here for the spring and the fall, right? Because it is just beautiful in spring and fall. Sam: No better place to be those two seasons. Kimberly: Nowhere. I mean, it is absolutely gorgeous. But, man, it is hot in the summer and it's summers are so long. And then lately, the winters have been cold and either. Sam: Yeah, you definitely get both extremes here. Kimberly: You really do anymore. I mean, even even in the winter, it's even if it's warm, it's rainy, you know. Sam: And so you kind of got to take the good with the bad. But we definitely get four seasons, unlike Florida, where I think they get like two. Kimberly: They get like I think they get like one and then a week or something else. Sam: Yeah, a week or something else. That's probably about right. Anybody from Florida, if you're listening, correct us if we're wrong. Kimberly: Do tell us if we're wrong. Sam: Email demandanddisrupt@gmail.com You know, we've been we've done the vacation thing there. Kimberly and I both have, but just not spent long durations of time there. Kimberly: No, only been there during tourist season. And, you know. Sam: Yeah, well, we started going on fall break before fall break. You know, really caught on. And now everybody goes on fall break. If you have kids, you know. Kimberly: Yeah, you go on fall break. But now you get hurricanes during fall break. Sam: Well, this is true. Yeah. And we used to go to get away from people from Henderson. But now, you know, 70 percent of Henderson go south. Kimberly: Yeah, exactly. Sam: We we we'd we'd be diving right into most of them if we went down to the coast. Kimberly: Exactly. Exactly. But we are in July and it is miserable here. But it is Disability Pride Month. Sam: That it is. Yes, indeed. Kimberly: So I thought, well, today, my guest is for the interview segment is Carissa Johnson and Keith Hosey. And we are going to talk about navigating the health care system as a person with a disability. So real, real fun stuff there coming. Sam: You know, really informative. It's it's, you know, a useful topic. Kimberly: Oh, it's a great conversation. I mean, we had a great conversation. But yeah, but before that, I thought that you and I might just dive into the controversial topic. Sam: I think you'll say dive into the pool. Kimberly: No. Well, that would be better. But that'd be great. The controversial topic of Disability Pride Month and how it's celebrated. Now, Disability Pride Month is celebrated in July because in July, I believe, July 26th of 1990 is when the Americans with Disabilities Act was signed into law. And that really changed the landscape of disability. And sort of since then, people have kind of made disability pride. We celebrate disability pride the whole month. Sam: But hard to believe that was 35 years ago. It's almost to the day. Kimberly: Yeah, it does. But, you know, people have their their feelings about disability pride. So, Sam, what I mean, my feelings are well known on this topic. What and on most topics, to be fair. But so where do you where do you stand on the whole is disability? You should be ...