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サマリー
あらすじ・解説
Imagine battling a rare disease for years, seeing over 40 doctors, and still not getting the right diagnosis—until one powerful moment changed everything. In this powerful episode, we dive deep into the world of chronic pain and rare diseases with Barby Ingle, a healthcare expert, author, and fierce advocate for patients who have been overlooked by traditional systems. After a life-altering accident that triggered a rare disease, Barbara’s journey through 42 medical providers and countless misdiagnoses led her to become her own best advocate. Join us as Barbara shares her inspiring story, her battle with genetic disorders, and how she's now working with legislators, including RFK Jr., to change the healthcare system for those suffering in silence. She'll also reveal groundbreaking insights on health through genetics, genetic testing, microbiome health, and how we can better address the needs of individuals dealing with chronic pain and rare diseases. Don’t miss this eye-opening conversation on the future of healthcare and how we can all advocate for better care.