I'm Aware That I'm Rare: the phaware® podcast

著者： phaware global association
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  • I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
    Copyright 2021 phaware global association. All Rights Reserved.
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あらすじ・解説

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
Copyright 2021 phaware global association. All Rights Reserved.
身体的病い・疾患 衛生・健康的な生活
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エピソード
  • Episode 493 - John Kingrey, MD and Nicole Fitzgerald

    Episode 493 - John Kingrey, MD and Nicole Fitzgerald
    2024/11/04

    John Kingrey, MD, director of the @integrishealth Pulmonary Hypertension (PH) center of Oklahoma and PH patient, Nicole Fitzgerald, discuss the importance of the physician-patient relationship as it relates to participation in clinical trials including the Phase 2 TORREY Study (now the Phase 3 PROSERA Study).
    #GossamerBioPartner #sponsored

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com.
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    25 分
  • Episode 492 - Kathy Downey

    Episode 492 - Kathy Downey
    2024/10/28

    Canadian patient, Kathy Downey, recounts her four-and-a-half-year journey with pulmonary hypertension (PH). Kathy shares the challenges of living with the condition, including reliance on high-flow oxygen and the emotional toll it has taken. Despite these obstacles, she has become a passionate advocate, educating others about PH and serving as an ambassador for PHA Canada. Throughout, Kathy highlights the crucial support from her husband and the difficulties caregivers face.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com @phacanada
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    15 分
  • Episode 491 - Sarah Stone

    Episode 491 - Sarah Stone
    2024/10/21

    Sarah Stone shares the story of her family's journey with rare medical conditions in North Central Minnesota. Sarah's life took a turn when her daughter began showing unusual symptoms, eventually diagnosed with pulmonary hypertension, a rare condition complicated by her family's genetic predisposition to HHT. As their medical challenges unfolded with two of her three children facing life-threatening conditions, Sarah discusses the trials of managing these complex issues while living in a remote area. She delves into the lessons learned, the importance of specialized medical care, and the determination to live life fully despite the circumstances.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com

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    21 分

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