『Major Pain』のカバーアート

Major Pain

Major Pain

著者： Jesse Mercury
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このコンテンツについて

 The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.Major Pain Podcast 衛生・健康的な生活
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  • Joan of Heart From Pedal Playhouse on Her Complex Medical Journey

    Joan of Heart From Pedal Playhouse on Her Complex Medical Journey
    2025/06/11
    Joan, or as she is better known on the internet Joan of Heart, is an enthusiastic content creator who is best known for her YouTube channel Pedal Playhouse. There she shares her passion for effect pedals not just by reviewing them, but demonstrating what they are capable of along with a healthy mix of comedic animations to keep the video fun and interesting. Joan actually started her channel in response to her ongoing health issues. She has a unique combination of gastrointestinal issues that have left her struggling with doctors to get a proper diagnosis, debating treatment options and dietary concerns. A silent form of GERD (gastroesophageal reflux disease), that lacks the usual heartburn, has damaged her esophagus over the years leaving her with Barrett’s Esophagus (a stiffening of the lower esophagus due to chronic acid exposure). She also has absent esophageal contractility leading to dysphagia or trouble swallowing. Combine both of those with a hiatal hernia where the stomach slides up through the opening in the diaphragm and she has a potent cocktail of issues that antacids, proton pump inhibitors, and sleeping on a wedge pillow can only partially alleviate. In this episode of the Major Pain Podcast, Joan shares her passion for music, media creation, the National Association of Music Merchants (NAMM), in addition to her story of diagnosis and struggles with both mental health and physical illness. Facing difficulty convincing doctors and preparing for corrective surgery, she tries to share her story to help others who may have the same struggles. She reflects on her personal journey as she tries to live up to her sign off line for her videos, “be the good you wish to see in the world”. Check out Joan of Heart at the Pedal Playhouse! https://www.youtube.com/@PedalPlayhouse PlayWatch the episode on YouTube, listen here on the website, or on your favorite podcast platform.
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    1 時間 13 分
  • Art Therapy and Mental Health Care for Chronic Illness Patients

    Art Therapy and Mental Health Care for Chronic Illness Patients
    2025/05/22
    Bonnie is a licensed marriage and family therapist in Washington state as well as a nationally registered and board certified art therapist. As an undergrad in psychology and art, Bonnie knew she wanted to help people but was initially hesitant to take on the graduate school needed to become an art therapist. After years of working with organizations helping connect people with the resources they needed, Bonnie was tired of referring clients to others for help and took the plunge on her own education. After 3-4 years of grad school and 2 more years of post graduate training she was able to provide art therapy services to those in need, with a focus on chronic illness and cancer care. She now works with adults providing art therapy services to help those with chronic conditions process their experience in a new way. Alongside Katie, another therapist working with patients with chronic pain (including the host of this program), Bonnie co-founded Dream Big Wellness. This 501(c)(3) nonprofit organization was dedicated to helping people with chronic pain, chronic illness, and cancer care access art therapy and mental health care services as they navigate the healthcare system. Today, with a team of 7 clinicians and 4 board members, they provide services to Washington state focused in the Seattle area. Through Dream Big Wellness, they provide unique opportunities for patients to express their emotions, struggles, and symptoms using art instead of words. This process can often help find new ways to express hard to convey truths and a new way to think about experiences through different perspectives. In this episode of the Major Pain Podcast we talk with Bonnie about the many benefits of art therapy and mental health care for those dealing with loss, grief, depression, post traumatic stress disorder (PTSD), and anxiety. Chronic illness can be such a large part of a person's lived experience, and art therapy can help escape that sense of isolation. Patients can gain understanding of their own experiences and new ways to communicate them to loved ones and care providers alike. Connect with Dream Big Wellness online at https://www.dreambigwellness.org/ While Dream Big Wellness serves patients within Washington state, there are many great organizations throughout the rest of the US. Arttherapy.org, the Art Therapy Credentials Board (ATCB.org), the American Psychological Association (APA.org), and Psychology Today all provide ways to find the right therapist for you. Podcast editing and write-up by Casey McKenzie. PlayWatch on YouTube or listen on your favorite podcast platform.
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    49 分
  • Living with Vascular Ehlers-Danlos Syndrome (VEDS)

    Living with Vascular Ehlers-Danlos Syndrome (VEDS)
    2025/05/07
    Hannah is still trying to live her life as any other 22 year old would, dancing with friends, enjoying the outdoors, and loving the cows on her family farm. She hopes to share this positive view of life with chronic illnesses on her public Instagram page beyond.the.label_0 to help show other young people with challenging diagnosis that joy and a life worth living are still possible. In this episode of the Major Pain podcast, she took a few minutes to talk to us about her journey with vascular Ehlers-Danlos syndrome from a lake near her home in Tennessee. Hannah started life as a perfectly healthy kid playing basketball, softball, cheerleading, and getting into trouble on the farm. Even then she watched her brother struggle with seizures and a difficult road to diagnosis that ended with Chiari malformation and tethered cord syndrome. When she got a concussion at the age of 13 everything seemed to change, and Hannah was also diagnosed with both Chiari and tethered cord, in addition to vascular Ehlers-Danlos syndrome (VEDS). She would later be diagnosed with postural orthostatic tachycardia syndrome (POTS) and is exploring the possibility that she may have mast cell activation syndrome (MCAS). Her doctors narrowed in on the vascular form of EDS when she was 16 and began having pain, fever, and illness with her periods which became unpredictable, either missing months at a time or lasting up to a year of continuous bleeding. After many surgeries to release the Chiari, fuse vertebrae, release the tethered cord, and a difficult decision to have a hysterectomy at age 19 to resolve her constant bleeding, Hannah still would not change a thing. Though she used to wonder why god would do this to her, she now sees the good that can come from perseverance. She talks us through her history with VEDS, tells us about her medications and coping mechanisms, as well as how her chronic illness journey has strengthened her faith. With her long term boyfriend and service dog at her side, Hannah is a resource for other patients going through similar life challenges as she continues to find what her future will bring. PlayWatch the episode on YouTube, or listen on your favorite podcast platform.
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    57 分

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