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NMOSD Your Way - Recognizing an Attack
- 2022/03/25
- 再生時間： 25 分
- ポッドキャスト
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サマリー
あらすじ・解説
In our third episode of NMOSD Your Way, Recognizing An Attack, our special guest is Dr. Dalia Rotstein, Assistant Professor of Medicine at the University of Toronto and Neurologist specializing in Multiple Sclerosisand other demyelinating diseases. She is also the Principal Investigator for CANOPTICS, the first Canadian national prospective study to investigate adults with NMOSD, MOG Antibody Disease, and other atypical demyelinating conditions. In this episode, Dr. Rotstein helps us understand how to recognize the early warning signs of an NMO attack, how we canadvocate for ourselves when seeking care during a relapseand what to expect during the recovery process. She breaks down symptoms of an attack and explains when it’s time to call our Neurologist. Dr Rotstein explains the difference between a pseudo attackand a relapse. She sheds light on resources available to support both patient’s physical and mental health well-being and recovery. Dr Rotstein delves into the healing process and determining after an attackat what point the damage may be considered permanent. Finally, she describes a national observational study monitoring people with NMOSD at all stages of the disease to see how they do over time. Aiming to learn more about the disease and how can NMOSD be diagnosed at an earlier stage. Our Host: Lelainia Lloyd has been living with Neuromyelitis Optica Spectrum Disorder (NMOSD) since she was 12 years old. She has experienced an epic 30-year journey living with NMOSD, from misdiagnosis to diagnosis and continues to navigate the obstacles of ignorance, ableism, and a medical culture that sometimes misses the mark for patient-centred care. The purpose of this podcast is to make information accessible to NMOSD patients and the community. Each episode has been inspired by questions from fellow patients and will include: signs, attacks, symptoms, self-care, relapses, managing mental health and pain to name a few. Our Guest: Dr. Dalia Rotstein is an Assistant Professor of Medicine at the University of Toronto and Neurologist specialized in Multiple Sclerosis (MS) and other demyelinating diseases. Her research is focused on the epidemiology of multiple sclerosis and Neuromyelitis Optica spectrum disorder (NMOSD). She has a particular interest in the roles of gender, ethnicity, migration, and vitamin D in these conditions. She is the Principal Investigator for CANOPTICS, the first Canadian national prospective study to investigate adults with NMOSD, MOG Antibody Disease, and other atypical demyelinating conditions. http://www.mssociety.ca/ Please visit http://www.NMOSD.ca/ for more information on what NMOSD is, how it affects the body, tips for daily life and how to discuss it with your doctor. The podcast is intended exclusively for the residents of Canada and is subject to all applicable laws and regulations therein. The podcast is intended for informational, personal and non-commercial purposes only. Persons having any specific questions, regarding diagnosis or treatment, are advised to contact their healthcare provider. This podcast was made possible with support from Alexion, AstraZeneca Rare Disease. For further information about your medical condition, please talk to your healthcare professional. All rights reserved. Alexion Pharma Canada Corp. For more NMOSD information and resources, please visit https://nmosd.ca/