Send us a text

Send us a text

Send us a text

Episode Introduction
In this episode, we talk about the Re-Purposing the Ordering of Routine laboratory Tests (RePORT) study, which is being conducted and implemented in Alberta and British Columbia. Hospitals frequently conduct routine blood tests, which not only cause patient discomfort but also significantly contribute to healthcare waste. Choosing Wisely Canada highlights that repetitive, “routine” blood tests are linked to increased mortality risks, advising against their repetitive testing in hospitalized patients.
The RePORT study adopts an innovative approach by involving individuals with lived experiences as active and equal partners throughout the research study. This collaborative effort is crucial in gaining insights into patient perspectives and experiences as well as enhancing engagement with in-hospital laboratory testing.

Guest Bios
Dr. Anshula Ambasta, is a general internal medicine physician, an assistant professor in the Department of Anesthesia, Pharmacology and Therapeutics at UBCs faculty of medicine. Her research focuses on improving the value of healthcare services using evidence-based implementation strategies. Dr. Ambasta is the Principal Applicant for the CIHR funded research study on Re-Purpose the Ordering of Routine laboratory Tests in hospitalized medical patients.

Anni Rycthera, is a Health Sciences College Educator and former Nurse Practitioner with a background in Holistic Health. As an immigrant and mother of two, her personal health challenges include respiratory illness, nerve pain from sports injury, and as a cancer survivor. These experiences have shaped her advocacy for informed patient care and equal health partnerships. She has volunteered extensively with UVIC’s self-management programs and the Leukemia and Lymphoma Society. Over a decade ago, she started collaborating with CIHR SPOR and the BC SUPPORT Unit on patient-oriented research activities. She has co-chaired the SPOR Patient Engagement National Community of Practice (SPENCoP) and is a Co-Chair for the RePORT Patient Advisory Council.

Publications
Re-Purposing the Ordering of Routine Laboratory Tests in Hospitalized Medical Patients (RePORT): protocol for a multicenter stepped-wedge cluster randomised trial to evaluate the impact of a multicomponent intervention bundle to reduce laboratory test over-utilization (July 2024)

Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendations (November 2023)

Patient perceptions of in‐hospital laboratory blood testing: A patient‐oriented and patient co‐designed qualitative study (September 2023)

Working together in health research: a mixed-methods patient engagement evaluation (August 2023)

Send us a text

In episode 4 of the PaCER series, we talk about the complexities of Congenital Cytomegalovirus (cCMV), a common virus that can affect 1 in 200 unborn children during pregnancy. Join us as we discuss a parent-led peer-to-peer Patient and Community Engagement Research (PaCER) study about the impact of cCMV on newborns, including potential lifelong health and developmental challenges such as hearing loss, visual impairments, and developmental delays. We will discuss the importance of early diagnosis, prevention strategies, and the controversial topic of universal newborn screening for cCMV. Our guests, PaCER graduates, parents with lived experiences, and a clinician-researcher talk about this critical issue in maternal and child health.

Bios
Laija Beaulieu is joining us from Thunder Bay, Ontario. She is a recent graduate of the PaCER program and will be starting her PhD in Health Sciences this coming fall. Laija’s academic career is inspired by her son who is affected by cCMV and has profound deafness bilaterally. Her son is the recipient of cochlear implants that electronically restores his hearing. However, living in a remote and rural area has made accessing and receiving CMV-related healthcare difficult.

Caroline Leroux is a recent graduate of the PaCER program from Montreal, Quebec. She is an osteopath and worked with her clientele for more than 10 years. Two years ago, she left her practice to be a stay at home mom and she joined the PaCER program to be part of the CMV team. Caroline's daughter Jade, who is 5, was diagnosed with cCMV at birth and has severe hearing loss with a cochlear implant and hearing aid. Caroline is looking forward to getting involved with more projects related to CMV.

Lisa Robinson is a Speech-Language Pathologist working in early education. Since experiencing her own journey with cCMV, she has become an advocate for greater awareness, prevention, detection and management of cCMV. She is driven by the belief that every family deserves the knowledge and care that is needed to improve outcomes for each child.

Marcia Bruce, is the Research Program Manager for the Reproductive Infectious Disease team at the University of Calgary's Cumming School of Medicine. As a Patient and Community Engagement Researcher she was excited to work with the CMV PaCER team as their team support. In addition to her work with the Reproductive Infectious Disease team she is also a volunteer patient advisor with Alberta Health Services and contributes as a patient research partner on several initiatives in the areas of digestive health, chronic pain and maternal health.

Dr. Eliana Castillo is a physician who works with pregnant people experiencing medical problems or infections. Her research focuses on closing the gap between what we know helps mother and babies live healthy lives and what actually happens in everyday clinical practice by partnering with patients to understand their journey during pregnancy. She co-authored the Canadian guidelines about CMV infection during pregnancy. She a Clinical Associate Professor in the departments of Medicine, Obstetrics & Gyneacology and Microbiology, Immunology and Infectious Diseases at the University of Calgary, Alberta, Canada.

Publication(s)

Perspectives of parents with lived experience of cytomegalovirus infection, on universal newborn screening for congenital cytomegalovirus (cCMV) in Canada: a patient-led qualitative study

Send us a text

Send us a text

Send us a text

Send us a text