Power In Me Foundation is a National Trust with CSR1, 80G and 12A certification. We are dedicated for the welfare of rare disease patients and their families. Power In Me is the official podcast of Power In Me Foundation that is aimed tocreate awareness and to be a resource for professionals and common people in understanding rare diseases and other health related information in an easy way.

The following episode is focused on the discovery of new rare disease “Perinatal Lethal Serpinopathy” by Dr. Shagun Agarwal, Additional Professor & Incharge, Head Department of Medical Genetics, Nizam’s Institute ofMedical Sciences, Hyderabad and her team.

Manoj Kumar Singh, National President of Power In Me Foundation talks to Dr. Shagun on their journey of discovery and reporting of this novel disease and many other aspects of early detection of rare diseases.

The questions covered are:

1. Symptoms of Perinatal Lethal Serpinopathy?

2. How the disease was discovered?

3. When couples should talk to geneticist?

4. Government Initiatives on rare disease?

5. Centre of Excellence of Rare Diseases?

6. Costs of genetic tests?

7. What caused those mutations?

8. Can Perinatal Lethal Serpinopathy affect Adultstoo?

9. And many more.

Here is the list of 13 centres of Excellence of Rare Disease in India:

1. AIIMS, Delhi

2. Maulana Azad Medical College, Delhi

3. SanjayGandhi Post Graduate Institute of Medical Sciences, Lucknow

4. Postgraduate Institute of Medical Education and Research (PGIMER), Chandigarh.

5. CDFD with Nizam Institute of Medical Sciences, Hyderabad

6. King Edward (VII) Memorial Hospital and Seth Gordhandas Sunderdas Medical College, Mumbai.

7. Institute of Post- Graduate MedicalEducation and Research, Kolkata

8. Centre for Human Genetics (CHG) with Indira Gandhi Hospital, Bangaluru

9. AIIMS, Jodhpur

10. Institute of Child Health and Hospital for Children, Egmore, Chennai

11. Government Medical College, Thiruvananthapuram

12. AIIMS, Bhopal

You Can Follow Power In Me Foundation on Our Social Media Handles too.

1. Linkedin- https://www.linkedin.com/company/power-in-me-foundation/?viewAsMember=true

2. Instagram- https://www.instagram.com/powerinmefoundation/

3. Youtube- https://www.youtube.com/@powerinmefoundation

4. Facebook- https://www.facebook.com/Powerinmefoundation/

For Volunteering, Pro Bono Work and Membership with our Organization you can email us at mpowerinme@gmail.com and Contact at +91-8851537816.

A podcast episode of interview where Mr. Manoj Kumar Singh, Trustee & National President of Power In Me Foundation talks to Chocolate Entrepreneur Ms. Shifa Saeed on her just starting journey of a solopreneur. And about her chocolate venture Melts. This is an initiative by Power In Me Foundation to support women entrepreneurs into their journey and be their support in making their business profitable. Shifa talks about her love for chocolate, new flavors, initial requirements for setting up chocolate business, customization and customer acquisition. She tells how she used her home appliances and made only very few buys to start her work. It covered buying molds and raw materials like chocolate with flavoring ingredients. She also gave tips for others if they wish to start with Homemade chocolate business.

Order for chocolate is taken from Instagram (@meltschocholate__) .

https://www.instagram.com/meltschocholate__?igsh=NTBtNGsxeWF4eDV6

And WhatsApp- 9545045442

You can connect and support Power In Me Foundation too in our efforts. Follow us on our website- www.powerinme.org

Instagram- https://www.instagram.com/powerinmefoundation

Youtube- https://www.youtube.com/@powerinmefoundation

Facebook- https://www.facebook.com/Powerinmefoundation

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We arecontinuously working towards fulfilling our objectives and bring positive social transformation. As a part of our GOOD HEALTH Project, in this special series, we are interviewing experts from different field with focus onHealth and Lifestyle. It is 9th Episode in the series.

This episode is focused around Disability Evaluation in Bleeding Disorder Hemophilia, Sickle Cell and Thalassemia as per Rights Of Person With Disability Act 2016.

A talk with Dr. Rajesh Singh Vaish, District Nodal of Hemoglobinopathies & Hemophilia program by NHM & Head of Pathology at District Hospital & Trauma Centre, Singrauli, M. P. Here Trustee & National President of Power In Me Foundation Mr. Manoj Kumar Singh discusses with him about the Disability Evaluation of three bleeding disorders included into Rights of Persons with Disability Act, 2016. The act got enforced in 2017-18 granting much needed Rights to patients of these bleeding disorders who face various limitations aka disabilities due to their rare conditions. Dr. Rajesh Sir gives a brief into the guidelines helping other doctors into understanding the evaluation process for these bleeding disorders. #powerinmefoundation #disabilityact2016 #disabilityevaluation #bleedingdisorders #hemophilia #sicklecellanemia #thalassemia #hemoglobinopathies #socialawareness #ngo #equalrights #equalopportunity #healthcare #india #delhi #bangalore #jaipur #bhopal #mumbai #indore #lucknow #varanasi

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We are continuously working towards fulfilling our objectives and bring positive social transformation. As a part of our GOOD HEALTH Project, in this special series, we are interviewing experts from different field with focus on Health and Lifestyle. It is 8th Episode in the series.

This episode is focused around Thalassemia. A talk with Dr. Rajesh Singh Vaish, District Nodal of Hemoglobinopathies & Hemophilia program by NHM & Head of Pathology at District Hospital & Trauma Centre, Singrauli, M. P. Here Trustee & National President of Power In Me Foundation Mr. Manoj Kumar Singh discusses with him about the Sickle Cell Disease. He shares details on symptoms, diagnosis and treatment of Thalassemia. Even the district hospital and trauma centre has facility for free diagnosis and treatment of the disease. #powerinmefoundation #thalassemia #sicklecellanemia #bleedingdisorders #hemophilia #hemoglobinopathy #bloodtransfusion #raredisease #socialawareness #ngo #powerinme #india #bangalore #delhi #bhopal #patna #lucknow #mumbai #indore

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We are continuously working towards fulfilling our objectives and bring positive social transformation.

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our fourth episode is focused on Career In Writing for Women.

Our Special guest speaker Ms. Sharmistha Sengupta talks about Career in writing field. Also, shares her own experiences. She speaks about her journey too as an author from being a homemaker to a published author. She talks about need for reading and improving the vocabulary in order to thrive in the industry as author/writer. She even talks about varous job opportunities as freelance writers, copywriters, script writers, poets and even for social media pages to web series writing. This talk is special series part of Women Empowerment and Livelihood generation where we collaborate with experts into imparting know hows from different industries and job opportunity in them.
#powerinmefoundation #ngo #womenempowerment #writing #contentwriter #contentwriting #writingskills #rarediseases #jobopportunities #jobsforwomen #experttalk #socialawareness #rarediseaseawareness #india #delhi #bhopal #lucknow #ranchi #jabalpur #mumbai #bangalore #patna #womenpower

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We are continuously working towards fulfilling our objectives and bring positive social transformation.

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our third episode is focused on Career In Food Industry/Entrepreneurship for Women.

On this special occasion our guest speaker to talk on Food industry & Entrepreneurship for women as Career is Kavyashree founder of Kaadhya Foodtech. She is sharing her experiences & learnings as a woman entrepreneur and from the family of a farmer. She uses her learnings and roots of the agriculture practices. She has even educated the farmers nearby about the organic farming and soil preservation. This is a special series by Power In Me Foundation where we explore about different career opportunities for women in various industries and help them through the experiences of the experts in the field. #powerinmefoundation #ngo #womenempowerment #foodindustry #entrepreneurship #organicfarming #rarediseases #jobopportunities #jobsforwomen #experttalk #socialawareness #rarediseaseawareness #india #delhi #bhopal #lucknow #ranchi #jabalpur #mumbai #bangalore #patna #womenpower

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We are continuously working towards fulfilling our objectives and bring positive social transformation.

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our Second episode is focused on Career In Plant Sciences for Women.

Our Special guest speaker is Lucy Sarkar talking on Horticulture & Plant Sciences as Career for women. She talks about the various aspects of career opportunities in plant sciences and educational qualifications needed for it. This is a special series by Power In Me Foundation where we explore about different career opportunities for women in various industries and help them through the experiences of the experts in the field. #powerinmefoundation #ngo #womenempowerment #plantsciences #plantbreeding #planttechnlogy #rarediseases #jobopportunities #jobsforwomen #experttalk #socialawareness #rarediseaseawareness #india #delhi #bhopal #lucknow #ranchi #jabalpur #mumbai #bangalore #patna #womenpower

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development. We are continuously working towards fulfilling our objectives and bring positive social transformation.

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our first episode is focused on Career In Clinical Research for Women.

Our guest speaker for this special Live is Ms. Pooja Rawat on topic Exploring career opportunities for women. She is a professional from Clinical research industry. Here she talks about career opportunities in Clinical Research Industry with focus on women. She talks about the needed qualifications, challenges, growth opportunities for women. She gives an introduction to clinical research, its need and how various jobs are been created in it. This talk is special series part of Women Empowerment and Livelihood generation where we collaborate with experts into imparting know hows from different industries and job opportunity in them.
#powerinmefoundation #ngo #womenempowerment #clinicalresearch #CRO #clinicalresearchassociate #crc #rarediseases #jobopportunities #jobsforwomen #experttalk #socialawareness #rarediseaseawareness #india #delhi #bhopal #lucknow #ranchi #jabalpur #mumbai #bangalore #patna #womenpower