S108: Family Advocacy

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S108: Family Advocacy

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In this heartfelt and informative episode, Kim Wardlow welcomes therapist and advocate Darran Zenger to explore the dynamics of family advocacy in the blind and low-vision community. Drawing from both professional expertise and personal experience living with Usher Syndrome, Darran dives into what it means to advocate for and within your family.
From setting expectations and communicating evolving needs to building support systems and navigating shifting family roles, Darran offers practical strategies and emotional wisdom. The conversation also explores the emotional side of disability, the importance of peer connection, and the value of mental health support for both individuals and families.

🕰️ Chapter Markers:
00:00 – Welcome & Intro to the Advocacy Series
01:20 – Meet Darran Zenger: Therapist and Advocate
03:45 – Defining Family Advocacy in Context
06:00 – Communication & Self-Advocacy Within the Family
08:05 – Common Family Challenges and Emotional Struggles
10:15 – Advocating for Inclusion in Everyday Life
12:30 – Teaching Children Advocacy Through Lived Example
14:35 – Balancing Support and Independence
17:00 – Advocacy Through Layout, Routine & Environment
19:00 – Empathy, Listening, and Perspective Shifts
22:50 – Adapting to Progressive Vision Loss Over Time
25:00 – Humor and Honesty in Self-Advocacy
27:30 – Tools, Training, and Support for Families
29:45 – Guide Dogs, Children, and Trust
31:45 – Educating Without Exhaustion
33:50 – Mental Health and the Need for Connection
36:55 – Final Thoughts and Resources

📬 Contact Information:
📧 Email: contact@aftersight.org
🌐 Website: www.aftersight.org