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  • 11/22/24: Where are kids' Long COVID clinical trials?
    2024/11/23
    In this episode: Where are the Long COVID clinical trials for kids? There are only two pediatric clinical trials testing drugs to treat Long COVID in kids — and only one of them is in the U.S. This week, reporter Simon Spichak speaks with podcast producer James Salanga about why there are so few of these pediatric clinical trials. Also in this episode: co-hosts Miles Griffis and Betsy Ladyzhets share the latest COVID-19 numbers, disappointing results from the BC 007 clinical trial, and details about REVERSE-LC recruiting participants. The transcript for this podcast is available on The Sick Times' website. You can jump to specific sections of the podcast and transcript below. (00:00:00) Intro (00:01:41) COVID-19 trends (00:05:45) Top story — Lack of pediatric clinical trials for Long COVID (00:18:28) Research — BC 007 trial results, REVERSE-LC recruitment (00:23:18) Outro and credits Donate to our end-of-year fundraiser⁠ and have your donation matched up to $1,000 — both one-time and monthly donations will be matched! Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. ⁠⁠⁠⁠Sign up here.⁠⁠⁠⁠ You can also find our podcast on ⁠⁠⁠⁠⁠Apple Podcasts⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠Pocket Casts⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠Amazon Music⁠⁠⁠⁠⁠, and ⁠⁠⁠⁠⁠iHeartRadio⁠⁠⁠⁠⁠. - This podcast contains a promo swap with the upcoming Public Health is Dead. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, November 19CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardCDC: Vaccination Trends | Respiratory IllnessesU.S. free COVID tests: COVID-19 Testing The Sick Times: Why are there almost no clinical trials for kids with Long COVID?The Daily Beast: Stanford Medicine Long COVID Study Blows Up Because of Unmasked Staff The Sick Times: Research updates, November 19 REVERSE-LC website Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfall
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    24 分
  • 11/15/24: One year of The Sick Times!
    2024/11/16
    This week, we celebrate one year of The Sick Times! The Sick Times team discusses the newsroom's origin story, what the publication means to them, and what the next year (and hopefully years, plural) holds. Also in this episode: the latest COVID-19 numbers, and recapping the team's coverage of the Fall 2024 PolyBio Symposium on Long COVID Research. The transcript for this podcast is ⁠available on The Sick Times' website⁠. You can jump to specific sections of the podcast and transcript below. (00:00:00) ⁠Intro⁠ (00:01:29) ⁠COVID-19 trends⁠ (00:05:14) ⁠Research — Recapping Fall 2024 PolyBio Symposium on Long COVID Research (00:09:08) ⁠Top story — One year of The Sick Times⁠ (00:28:54) ⁠Outro and credits⁠ Want to give us a birthday gift?Donate to our end-of-year fundraiser⁠ and have your donation matched! Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. ⁠⁠⁠Sign up here.⁠⁠⁠ You can also find our podcast on ⁠⁠⁠⁠Apple Podcasts⁠⁠⁠⁠, ⁠⁠⁠⁠Pocket Casts⁠⁠⁠⁠, ⁠⁠⁠⁠Amazon Music⁠⁠⁠⁠, and ⁠⁠⁠⁠iHeartRadio⁠⁠⁠⁠. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, November 12CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardCDC: Serologic Evidence of Recent Infection with Highly Pathogenic Avian Influenza A(H5) Virus Among Dairy WorkersInstagram: @ppeforcaliforniaU.S. free COVID tests: COVID-19 Testing The Sick Times: Live blog: Following the Fall 2024 Polybio Symposium on Long COVID ResearchThe Sick Times: Press release: The Sick Times announces one year of covering the Long COVID crisisThe Sick Times: ‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goalsThe Sick Times: Q&A: NIH Director Dr. Monica BertagnolliThe Sick Times: A brief, oral history of mask blocs: Part 1The Sick Times: A brief, oral history of mask blocs: Part 2The Sick Times: A brief, oral history of mask blocs: Part 3 The Sick Times x Them: These are the drag artists and organizers fighting to make queer spaces more COVID safeThe Sick Times: Introducing Long COVID Essentials, a new resource series Public Health is DeadDeath Panel Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Party hornPixabay: Happy Birthday To You - Bossa Nova style arrangementPixabay: Thunder and the beginning of rainfall
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    30 分
  • 11/10/24: SICK Pride in South Africa; The Sick Times' end-of-year fundraiser
    2024/11/10
    In this episode: Disability visibility via SICK Pride in South Africa and The Sick Times' end-of-year fundraiser. Sam Pearce, a Cape Town-based writer living with myalgic encephalomyelitis (ME), and Mlindeni Gabela, the Long COVID Ambassador for ME and Long COVID Unite South Africa, share their experience organizing SICK Pride, an event creating visibility for their illnesses. Co-hosts Betsy Ladyzhets and Miles Griffis talk with podcast producer James Salanga about The Sick Times' end of year fundraiser. Also in this episode: the latest COVID-19 numbers, and an $800,000 grant for a clinical trial of a repurposed drug that could help with immune or infection-related dysfunction in Long COVID. The transcript for this podcast is ⁠available on The Sick Times' website⁠. You can jump to specific sections of the podcast and transcript below. (00:00:00) ⁠Intro⁠ (00:01:16) ⁠COVID-19 trends⁠ (00:03:58) ⁠⁠Top story — SICK Pride⁠⁠ (00:12:15) ⁠Top story — End-of-year fundraiser⁠ (00:18:12) ⁠Research — Rapamycin clinical trial (00:20:06) ⁠Outro and credits⁠ Donate to our end-of-year fundraiser and have your donation matched up to $1,000 — both one-time and monthly donations will be matched! Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. ⁠⁠⁠Sign up here.⁠⁠⁠ You can also find our podcast on ⁠⁠⁠⁠Apple Podcasts⁠⁠⁠⁠, ⁠⁠⁠⁠Pocket Casts⁠⁠⁠⁠, ⁠⁠⁠⁠Amazon Music⁠⁠⁠⁠, and ⁠⁠⁠⁠iHeartRadio⁠⁠⁠⁠. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, November 5CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardU.S. free COVID tests: COVID-19 Testing The Sick Times: We set out to make our 'invisible illness' visible in South Africa with SICK PrideThe Sick Times: Support Long COVID journalism in our end-of-year fundraiserThe Sick Times: Research updates, November 5The Sick Times: Still Here, October 18The Sick Times: New Long COVID and complex disease center at Mount Sinai set to be a leader in research, clinical care Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfall
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    21 分
  • 11/1/24: Mask bloc oral histories
    2024/11/02
    Mask blocs have been a crucial pillar of mutual aid in communities around the globe, as community members undertake the work of public health organizations to keep each other safe. This week, oral histories from mask bloc organizers are interspersed with some context from journalist and author Britta Shoot, who put together a three-part series collaging said oral histories. Also in this episode: the latest COVID-19 numbers, and the National Institute of Health officially seeks input on its RECOVER-Treating Long COVID initiative. The transcript for this podcast is available on The Sick Times' website. You can jump to specific sections of the podcast and transcript below. (00:00:00) Intro (00:01:31) COVID-19 trends (00:04:32) Research — RECOVER-TLC request for info (00:06:45) Top story — Mask bloc oral histories (00:21:19) Outro and credits Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. ⁠⁠Sign up here.⁠⁠ You can also find our podcast on ⁠⁠⁠Apple Podcasts⁠⁠⁠, ⁠⁠⁠Pocket Casts⁠⁠⁠, ⁠⁠⁠Amazon Music⁠⁠⁠, and ⁠⁠⁠iHeartRadio⁠⁠⁠. - Mentioned in this episode (in order of appearance): The Sick Times: “A good step”: Long COVID advocates and researchers respond to the RECOVER-Treating Long COVID meetingThe Sick Times: National COVID-19 trends, October 29CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardNIH: Submit ideas for therapeutics and biologics via the RECOVER-TLC Intervention Information Request FormNIH: Share interest to serve on a RECOVER-TLC working groupNIH: Submit biomarkers for Long COVIDNIH: Submit general feedback on RECOVER-TLCU.S. free COVID tests: COVID-19 Testing The Sick Times: A brief, oral history of mask blocs: Part 1The Sick Times: A brief, oral history of mask blocs: Part 2The Sick Times: A brief, oral history of mask blocs: Part 3 The Sick Times: “Perfect storm” of criminalization: Analyzing mask bansThe Sick Times: Mask bans and proposed bans by state COVID Action Map Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfall
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    22 分
  • 10/25/24: Low-dose naltrexone in clinical trials
    2024/10/26
    This week, co-hosts Betsy Ladyzhets and Miles Griffis talk with podcast producer James Salanga about clinical trials looking at low-dose naltrexone (LDN) as a potential drug for people living with Long COVID and ME. Also in this episode: the latest COVID-19 numbers, and a new survey of around 70,000 people in China looking at Long COVID, reinfections, and more. The transcript for this podcast is available on The Sick Times' website. You can jump to specific sections of the podcast and transcript below. (00:00:00) Intro (00:01:10) COVID-19 trends (00:03:22) Top story — Low-dose naltrexone clinical trials (00:17:40) Research — Long COVID facts and findings in thousands of Chinese survey participants (00:23:07) Outro and credits Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. ⁠Sign up here.⁠ You can also find our podcast on ⁠⁠Apple Podcasts⁠⁠, ⁠⁠Pocket Casts⁠⁠, ⁠⁠Amazon Music⁠⁠, and ⁠⁠iHeartRadio⁠⁠. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, October 22CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardNature: Daily briefing: COVID protections eliminated a strain of flu CDC: Vaccination Trends | Respiratory IllnessesU.S. free COVID tests: COVID-19 TestingThe Sick Times: Clinical trials explore how Low-Dose Naltrexone could help people with Long COVIDThe Lancet: Regional Health — Western Pacific: Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participantsThe Lancet: Regional Health — Western Pacific: Long Covid is a significant health crisis in China too Research Square: Long COVID and associated outcomes following COVID-19 reinfections: Insights from an International Patient-Led Survey Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfall
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    24 分
  • 10/18/24: New Mount Sinai Long COVID center
    2024/10/19
    This week, co-host Betsy Ladyzhets recaps her reporting tour of the new Long COVID and complex disease center at Mount Sinai, with additional commentary from co-host Miles Griffis. Miles and Betsy also talk with podcast producer James Salanga about the latest COVID-19 numbers. And in research, they share more information about a preprint based on an analysis of 23andMe’s database that suggests genetic associations with Long COVID and a study looking at the cardiac risks associated with COVID-19 infection. The transcript for this podcast is ⁠available on our website⁠. You can jump to specific sections of the transcript and podcast below. (00:00:00) Intro (00:01:20) COVID-19 trends (00:03:22) Top story — New Mount Sinai Long COVID center (00:16:48) Research — 23andMe genetic associations with LC preprint, study about increased cardiac risks after SARS-CoV-2 infection (00:19:40) Outro and credits Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. Sign up here. You can also find our podcast on ⁠Apple Podcasts⁠, ⁠Pocket Casts⁠, ⁠Amazon Music⁠, and ⁠iHeartRadio⁠. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, October 15CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardU.S. free COVID tests: COVID-19 TestingThe Sick Times: New Long COVID and complex disease center at Mount Sinai set to be a leader in research, clinical careHow to Start a Mask BlocThe Sick Times: Research updates, October 15 Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfallJoshua Roman: Immunity (version included in podcast was recorded live by Betsy)
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    21 分
  • 10/11/24: Honoring Tinu Abayomi-Paul
    2024/10/12
    Atinuki “Tinu” Abayomi-Paul was “so funny … and so clever” and “wonderful at supporting disabled people in a beautiful and authentic way.” Several of those who loved and cared for Tinu reflect on her legacy and life in this episode of Still Here. Before the segment of the episode dedicated to honoring Tinu, co-hosts Miles Griffis and Betsy Ladyzhets talk with podcast producer James Salanga about the latest COVID-19 numbers. And they share a brief hopeful update about beginning analysis that could help lead to repurposed drugs as treatment for Long COVID. The transcript for this podcast is available on our website. You can jump to specific sections of the transcript and podcast below. (00:00:00) Intro (00:01:34) COVID-19 trends (00:03:23) Research — CURE ID begins survey analysis (00:07:38) Top story — Honoring Atinuki "Tinu" Abayomi-Paul (00:19:00) Outro and credits You can also find our podcast on Apple Podcasts, Pocket Casts, Amazon Music, and iHeartRadio. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, October 8CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardThe Sick Times: Research updates, October 8 CUREID: Long COVID surveyThe Sick Times: Long Covid surveys from a FDA/NIH initiative ask which drugs help alleviate symptomsThe Sick Times: Live blog: Following the RECOVER-Treating Long COVID kickoff eventThe Sick Times: “A good step”: Long COVID advocates and researchers respond to the RECOVER-Treating Long COVID meeting The Sick Times: Still Here, October 4: Links and transcriptThe Sick Times: Tinu Abayomi-Paul, writer, disability advocate, and person with Long COVID, dies at 52Creaky Joints: Testing COVID-Positive: My Experience as a Black, Disabled, Immunocompromised WomanGoFundMe: Honoring Tinu’s Legacy With Compassionate Support Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)Pixabay: Thunder and the beginning of rainfallRooted in Rights: Disabled, Not Disposable – TinuNational Disability Rights Network: Tinu Abayomi-Paul
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    20 分
  • 10/4/24: Recapping the NIH RECOVER-TLC kickoff
    2024/10/04
    In the pilot episode of Still Here: A Podcast From The Sick Times, co-hosts Miles Griffis and Betsy Ladyzhets talk with podcast producer James Salanga about the latest COVID-19 numbers. Engagement editor Heather Hogan joins James, Miles, and Betsy to recap the NIH RECOVER-TLC meeting from last week. And in research, a hopeful update about a nasal spray effective at blocking respiratory viruses — including COVID-19. The transcript for this podcast is available on our website. You can jump to specific sections of the transcript and podcast below. (00:00:00) Intro (00:02:15) COVID-19 trends (00:04:55) Top story — Recap of NIH RECOVER-TLC meeting and reflections (00:22:15) Research — A nasal spray that performed well in preclinical trials (00:23:00) Outro and credits You can also find our podcast on Apple Podcasts, Pocket Casts, Amazon Music and iHeartRadio. - Mentioned in this episode (in order of appearance): The Sick Times: National COVID-19 trends, October 1CDC wastewater dashboardBiobot wastewater risk reportsWastewaterSCAN dashboardThe Sick Times: ‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goalsThe Sick Times: Q&A: NIH Director Dr. Monica Bertagnolli on next steps for RECOVER, future Long COVID research plans, and more The Sick Times: Live blog: Following the RECOVER-Treating Long COVID kickoff eventThe Sick Times: “A good step”: Long COVID advocates and researchers respond to the RECOVER-Treating Long COVID meeting National Academies Press: Global Functioning in Long COVIDJAMA Network: Characterizing Long COVID in Children and AdolescentsThe Sick Times: Five reasons why the NIH should retract the “effort preference” claims in their intramural ME/CFS paperNIH RECOVER websiteRECOVER-TLC: Submit a therapeutic to be considered in a clinical trialHarvard Gazette: Drug-free nasal spray blocks, neutralizes viruses, bacteria Additional audio in this episode: Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Pixabay: Thunder and the beginning of rainfall
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    24 分