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  • Living Beyond Diagnosis: Navigating Life with Incurable Cancer
    2024/10/06

    Join us as we talk to Caitlin about living with stage 4 ovarian cancer.


    Caitlin is an IVF Scientist and leader in healthcare with 25 years’ experience, Caitlin became ‘the patient’ herself when diagnosed with stage 4 clear cell ovarian cancer in 2017. After witnessing the impact of compassion in healthcare she founded CareFully, a compassion education business which aims to empower and support healthcare professionals to deliver compassionate care - via webinars, keynote addresses and workshops.


    Caitlin is a passionate patient advocate for person-centred care and tirelessly campaigns for equity in access to best care for ALL cancer patients. Her advocacy work has led her to collaborate with numerous patient organisations and high-profile media campaigns, and to deliver keynote presentations including to the current and former Prime Ministers. Caitlin is on the Patient Advisory Boards of both the Chris O'Brien Lifehouse and Rare Cancers Australia and chairs the VCCC Alliance National Patient Advisory Committee. She is currently co-authoring a paper on compassion education, which will be published later this year.


    Visit https://www.care-fully.com.au/our-founder for more information

    Checkout Caitlin sharing her story for the Camilla and Marc 'Ovaries Talk About Them' campaign here - https://www.instagram.com/camillaandmarc/reel/C_FnVrmPMIb/


    *Full disclosure, this was recorded back in May and Sam was sitting in a bedroom of an Airbnb she was staying in so apologies for her terrible audio.


    Hosted on Acast. See acast.com/privacy for more information.

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    1 時間
  • From Prostate Cancer to Patting the Shark
    2024/09/29

    Join us as we talk to Tim Baker.


    Tim is an award-winning and best-selling author and journalist specialising in surfing culture. He is a former editor of Tracks, Surfing Life and Slow Living magazines, and a two-time winner of the Surfing Australia Hall of Fame Culture Award. His latest book Patting The Shark documents his experience living with advanced prostate cancer and we chat to him about that in this episode.


    https://www.bytimbaker.com/


    Hosted on Acast. See acast.com/privacy for more information.

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    52 分
  • Bonus Episode: Losing Mike and the birth of MyMuse
    2024/09/22

    In this epsidoe we pick up from where we left in episode 3.


    Nikki shares a little more of her story from when Mike was told his cancer had spread to his lungs to him passing away and within all of that, how she found her calling and created her company MyMuse.


    Visit https://www.mymuse.com.au/ for more information


    Hosted on Acast. See acast.com/privacy for more information.

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    33 分
  • Genomic Insights: Unveiling the Future of Personalised Health with Krystal Barter
    2024/09/15

    Join us as we talk to Krystal Barter.


    Krystal is a pioneering healthcare advocate with over 20 years of experience. Diagnosed with the BRCA1 genetic mutation in her early 20s, she underwent a preventative mastectomy at 25, sharing her story publicly on 60 Minutes and inspiring many. Krystal founded Humanise Health, a global patient-led advocacy agency, and co-founded the Genomics Coalition, where she leads policy and strategy. Passionate about women's health, she continues to advocate for better access to hormone replacement therapy (HRT) and other crucial healthcare innovations.


    Visit https://wehumanisehealth.com/ or https://genomicscoalition.org/ for more information.


    Hosted on Acast. See acast.com/privacy for more information.

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    57 分
  • Rare Resilience: From Patient to Advocate - A CEO's Journey
    2024/09/08

    Join us as we talk to Christine Cockburn.


    Christine says that caring for her mum was one of the great privileges of her life, then when she had her own cancer experience, she realised that her Mum's rare diagnosis had been a whole different world. Now every day Christine gets to work with the rare community, and she couldn't feel more fortunate. After six years as Head of Patient Support, and then General Manager at Rare Cancers Australia (RCA), she now holds the position of Chief Executive Officer.


    Christine combines her expertise in sociology and public health with her drive to be bold and brave in leading RCA’s advocacy efforts and its dedicated team in their mission – to improve the lives and health outcomes of Australians living with rare and less common cancers. She sits on several advisory bodies including for Australian Genomics and Patient Voice Initiative; and is proud to be supervising an industry PhD project in partnership with LaTrobe University on rare cancers and the provision of information.


    Visit https://www.rarecancers.org.au/ for more information.


    Hosted on Acast. See acast.com/privacy for more information.

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    50 分
  • Bonus Episode: Hair Loss and Mollie the Wig
    2024/09/01

    When you are diagnosed with Cancer and are told you require chemotherapy, you immediately think hair loss.

    In this bonus episode, Nikki and Sam discuss the journey of hair loss from when Sam was first diagnosed to almost 18 months later including using a cold cap, buying a wig (Mollie) and the stages of it growing back.


    We discuss the beautiful family business A Warriors Gift.

    If you are looking for gift ideas for someone who has recently been diagnosed with cancer, visit their website https://www.awarriorsgift.com/ to shop hampers, head scarves and other gorgeous gifts.


    Hosted on Acast. See acast.com/privacy for more information.

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    27 分
  • Resilient Resurgence: Defying Cancer Three Times
    2024/08/25

    Join us as we talk to Erini Dinou about her cancer diagnosis, recurrence and dealing with 2 cancers at the same time.


    At 34 Erini was diagnosed with HER2+ breast cancer, then 8 years later the same breast cancer returned along side thyroid cancer at the start of Covid lockdown in Sydney.

    Erini chose to have a bi-lateral flat closure mastectomy at the same time as thyroid removal.

    Followed by chemotherapy for BC and radio active iodine treatment for thyroid.


    Erini moved back to NZ once the boarders were opened, and slowly restarted her life again, training in brow tattooing and opening up her own beauty salon in Wellington.


    Her health is great now but the on going effects from treatments still play a hard part in her daily life - finding a juggle of feeling great and not feeling so great which is probably the hardest part of her journey.


    Erini is an absolute injection of positive energy that everyone needs in their life.


    Hosted on Acast. See acast.com/privacy for more information.

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    52 分
  • Life After Loss: A Husbands Journey
    2024/08/11

    Join us as we talk to Nick Kelly about navigating losing the love of his life to a rare cancer and becoming a single parent to his 1 year old son, Xander.


    But also how life led him to meet Nikki and how his late wife's legacy lives on in their life each and every day.


    Visit https://mummyswish.org.au/ to find out more about the bears Nikki mentions.


    Hosted on Acast. See acast.com/privacy for more information.

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    40 分