The Grace, Grief and Grit Podcast

著者： Dee Daniels Media Podcast Network
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  • Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
    Copyright 2023 All rights reserved.
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  • Goals, Dreams, and the Power of Connection: We had another BALL!

    Goals, Dreams, and the Power of Connection: We had another BALL!
    2024/09/05

    Anne and Joe Davis are here to celebrate the success of the 3rd Annual Hallie Grace Memorial Ball for EB!

    First - a BIG THANK YOU to all who were able to attend, volunteer, or support in any way. We did reach our financial support goals for the ball!! Secondly, we continue to evolve and grow as an organization. This year we saw firsthand our vision of "more connection" come to the surface.

    Hallie Grace Davis is a beautiful soul that continues to create an impact on our world - and certainly within the EB community. It's not too early for you to be a part of the next ball, as well as help fund the important research that is going on right now for more treatments and a cure.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
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    55 分
  • Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis

    Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis
    2024/07/18

    Nicholas A. Christakis, MD, PhD, MPH, professor at Yale University, is a sociologist and physician who conducts research in the areas of social networks and biosocial science. He directs the Human Nature Lab.

    The author of four books and over 200 articles, Christakis was elected to the Institute of Medicine of the National Academy of Sciences in 2006 and was made a Fellow of the American Association for the Advancement of Science in 2010 and a Fellow of the American Academy of Arts and Sciences in 2017.

    On this episode we are talking to Nicholas about his book, "BLUEPRINT: The Evolutionary Origins of a Good Society". In Blueprint, he introduces the compelling idea that our genes affect not only our bodies and behaviors, but also the ways in which we make societies, ones that are surprisingly similar worldwide.

    He brings some impactful questions related to grief to the table, like: Why do we have this capacity for grief? Why is it helpful for us as humans to have the experience of the emotions around grief?

    "Emotions are a very primitive form of communication that far preceded our capacity for language - it's a more sophisticated type of communication."

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Meet Dr. Nicholas Christakis

    Learn more about the book "Blueprint: The Evolutionary Origins of a Good Society"

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
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    59 分
  • THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents

    THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents
    2024/04/29

    "It's not, obviously, the way we would want to meet, but I'm so grateful that we did" - Anne Davis says this in regard to becoming "chosen family" with Kaytlynn and Anthony - parents of Addilynn Grace - who had severe Junctional EB - and passed away on December 22, 2022.

    Katlynn and Anthony include Addilynn in everything they do. They also do so much to raise awareness about Epidermolysis Bullosa. Both families take much needed time in this episode to hold space for the grief journey and share stories about their beautiful "butterfly" children.

    Anthony says, "looking back - we were so worried about taking care of her - we didn't realize she was the one taking care of us".

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    BUY YOUR TICKETS to the 3rd Annual Butterfly Ball

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
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    1 時間 18 分

あらすじ・解説

Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Copyright 2023 All rights reserved.
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