検索キーワード： 著者 "rara" すべてのカテゴリー

Shedding light on underrepresented diseases and the efforts of non-profit foundations working tirelessly to support those affected.

What's up, I'm RA-RA @Bantuotaku He | Them | Trickster | Griot | Ra-Ra Supreme An Openly Problack Clubhead Otaku! God Body, Intersectional Bliss from New Jerusalem I love to make content of all kinds and make hell for a reason!!! Bantu Otaku mean Black Nationalist, It's just an double entendre to showcase my intersectional nature if that makes sense. My pages are meant to be an Online Underground RailRoad for Black Content so enjoy!!! Engage with me and other within our boundless perspectives and build a sense of solidarity. It's like that say development comes one brick at a time... ✌🏿 ...

Hi, Welcome to the Strong and Rare parenting podcast. My name is Victoria, and I am a special needs momma of two fun loving boys. In this podcast, we will speak about all things Autism, ADHD, and Rare Diseases. This podcast will bring awareness, acceptance, and knowledge on all things we want to learn as parents raising children with special and medical needs. When you join me, I hope that you will walk away with hope and be empowered to be a driver of change for our community. Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support

This page features multiple Podcasts for the gem of a text based game, torn.com - The original Torn Underground w/ Ara & TheFelan. Tuesday Talks w/ Paul. Lastly, Women of Torn w/ Jairyll & Glandem!

Il podcast gMG Your Way è una serie di otto puntate realizzato con il patrocinio e contributo dell’associazione pazienti Associazione italiana miastenia (A.I.M). Romina Gibertoni, segretaria di A.I.M, ci accompagnerà in un percorso di scoperta all’interno del mondo della gMG, ossia la miastenia gravis generalizzata. In ogni episodio, Romina sarà affiancata da persone che vivono e affrontano questa malattia ogni giorno, clinici, caregiver e altri membri attivi della comunità gMG, che, attraverso la condivisione delle loro storie, esperienze e professionalità ci aiuteranno a capire ...

Sejam todos bem vindos ao Talento Raro Podcast, um podcast semanal voltado para a cultura e mundo pop. Todas as novidades, lançamentos e assuntos mais comentados da semana você encontra aqui! Para não perder nada, nos siga no Instagram: @talentoraropodcast

The Your way Podcast series features Neuromyelitis optica spectrum disorder (NMOSD) patient ambassador Debbie Leticq, alongside healthcare professionals including neurologist Dr Lesley-Ann Hall, Specialist Nurse and Research Fellow, Dr Therese Burke, and psychologist, Dr Sally Shaw, who all share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations shine a light on the day-to-day reality of living with NMOSD, provide some insights and advice to those who may find themselves either newly diagnosed or learning to live with NMOSD. If you would like ...

Canfranc, 1944. La joven Valentina Báguena, colaboradora de la Resistencia contra las fuerzas de ocupación nazis en el sur de Francia, descubre que la guerra cambia por completo la forma de vivir, de pensar y, sobre todo, de amar cuando conoce al paracaidista alemán Franz Geist el mismo día en que un incendio destruye el pueblo de Canfranc. Tras la devastación producida por el fuego, los habitantes de este lugar serán víctimas, además, de una de las mayores estafas de la historia de España. Un hecho de dimensiones extraordinarias, pero casi desconocido hasta ahora.

ABCs of NMOSD brings together the latest information and research about all things NMOSD, from diagnosis and treatment to quality of life and what it’s like to live with NMOSD. We invite medical experts and researchers, to share the latest up-to-date research and clinical knowledge. We have conversations with individuals who have been diagnosed with NMOSD, their caregivers, and allied health professionals. We give tips on how to advocate at school and at work, where to find help and support, navigate health insurance, and work with a team of medical experts.

The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.

Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support

Comment poser le bon diagnostic sur ces nouveau-nés et enfants atteints par des pathologies rares, des malformations de la tête, du cou et des dents ? Vers qui diriger les familles ? Comment parler de ces maladies, les comprendre et les affronter ? Les différents spécialistes de la Filière TETECOU apportent des réponses. Dans « Mots de têtes », le podcast proposé par la Filière de Santé Maladies Rares TETECOU, nous découvrons l’existence de tout un réseau spécialisé dans des pathologies rares, des malformations de la tête, du cou et des dents présentes à la naissance ...

Over 50 years ago, I was born to a family that ostracized me due to my father’s occupation as a criminal. Although my parents were married, had it not been for my grandfather, we would have been put in orphanages due to the dysfunctional nature of my family. I still have memories of the neglect and abandonment that I experienced.

O podcast Peças Raras foi criado em 2006 pelo professor e radialista Marcelo Abud. Áudios que contam a história do rádio e entrevistas com comunicadores são a base dos episódios. Aqui, vamos publicar alguns conteúdos que valem ser lembrados. Siga na sintonia!

TE BUSCO es la primera serie de Las Raras, un podcast policial en el que la periodista chilena Catalina May busca al hombre que la atropelló hace 20 años. Una coproducción con Podium Podcast. Las Raras somos un podcast documental independiente con un diseño de sonido único. Contamos Historias de Libertad. Usamos paisajes sonoros y música original. Hablamos de feminismos, medioambiente, derechos humanos, movimientos sociales y más. Encuentra nuestras primeras cinco temporadas en todas las plataformas de audio y lasraraspodcast.com y en Podium Podcast. Nuestra sexta temporada es un ...

Refined. Aged. Bespoke. The Old Fashioned Podcast brings a refreshing point of view on nerd culture and beyond. Enjoy your weekly dose of witty banter, dry humor & brutal honesty.

Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers. Produced by Rare Cancers Australia

Techniq and NightHawkPlayz are your guides for everything comics. Join them as they discuss the latest and greatest from Marvel and DC.

WE EVALUATE MARKETS AND GEOPOLITICS RELATED TO ENERGY. JOIN US FOR AN EPISODE.

South London's explosive new podcast discussing pressing topics that are prevalent to young people. Rare talks main host Adz brings uncomfortable and controversial discussions to the forefront of society's attention with special guest speakers from all walks of life.Support this show http://supporter.acast.com/raretalks. SUPPORT THE TING YES https://plus.acast.com/s/raretalks. Hosted on Acast. See acast.com/privacy for more information.