• 6. A kid with cancer just wants to be a normal kid! Communication, chaos, caretaking, and childhood cancer awareness month.

  • 2024/09/01
  • 再生時間： 44 分
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6. A kid with cancer just wants to be a normal kid! Communication, chaos, caretaking, and childhood cancer awareness month.

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  • Episode PearlsKids just want to be normal! Providing a sense of normalcy and finding joy is crucial for children undergoing cancer treatment.Let’s be more intentional about our conversations with patients and parents. Instead of asking “how are you?” perhaps a better approach might be “how can I help?”Pediatric cancer research needs more funding. Only 4% of federal funding for cancer research is allocated to pediatric cancers. #morethanfour #morethan4You cannot pour from an empty cup. Taking care of yourself—whether you are a healthcare provider or a parent to a child with cancer—is important in order to provide the best care and support to others.Parents and families have insights into how to communicate with their kid. Let’s partner with parents to best understand how to talk to their child about a cancer diagnosis—or any hard news. Leveraging the expertise of other healthcare professionals (looking at you, child life specialists, social workers, psychologists! Y’all are the best!) can help to find the best approach for each kid.Today’s Podcast GuestChristine Jurgensen, CEO/Founder, Evan’s Avengers FoundationIn 2016, my son, Evan, was diagnosed with Acute Biphenotypic Leukemia, as he had both Acute Lymphoblastic Leukemia as well as Acute Myeloid Leukemia. For 3 years, Evan had numerous surgeries, pokes, prodding, IVs, blood and platelet transfusions, two bone marrow transplants, graft-versus-host disease (GVHD), infections, and then some. He had so many different chemotherapy medications and total body irradiation, which have saved him. However, they carry current and possible future side effects. I made a promise to my son that I would start Evan’s Avengers Foundation to help fund research to end Childhood Cancer. With more than 12 major types of pediatric cancers and over 100 subtypes, childhood cancer should not be considered rare. Each day, 43 children, more than a classroom, will be diagnosed with some form of cancer and are at risk of a high mortality rate. Many will later suffer from secondary cancer due to medication used to save their lives. The National Cancer Institute receives its budget from the United States Congress as part of the federal budget process through appropriations for the Department of Health and Human Services and the National Institute of Health (NIH). Despite of this, only 4% of federal government cancer research funding goes to study pediatric cancer, that’s just 4¢ on the dollar. We must write our Congressman and plead them to increase this budget. Make some noise with us and #GoGoldforchildren #GoldStrong #GogoldforevansavengersConnect with Evan’s Avengers Foundation:Instagram https://www.instagram.com/evansavengersFacebook https://www.facebook.com/evansavengersfoundation/Website http://www.evansavengers.org/Donate to Evan’s Avengers Foundation http://www.evansavengers.org/donate/----- I host a weekly gathering of PAs like you who believe in creating a beautiful PA life - it's called the Thriving PA Community Hour. It's an opportunity to learn, share, connect, and lift each other up. And you're invited! Get the Zoom link here - I'd love to see you :)Want a deep dive into the science behind the tools in this week's podcast episode? It drops into your email inbox every Sunday at midnight. Want in? I'd love to have you!Worried about burnout? You came to the right PA! Get the Burnout Deep Dive here - a resource-rich pdf that will help unlock your burnout. And I created a complete diagnostic assessment for burnout, you can get it here: How Full is My Cup?Want more evidence-based tools, expert tips, and words of wisdom for creating your beautiful PA life? Check out my Instagram page: @rachel.la.costa
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Episode PearlsKids just want to be normal! Providing a sense of normalcy and finding joy is crucial for children undergoing cancer treatment.Let’s be more intentional about our conversations with patients and parents. Instead of asking “how are you?” perhaps a better approach might be “how can I help?”Pediatric cancer research needs more funding. Only 4% of federal funding for cancer research is allocated to pediatric cancers. #morethanfour #morethan4You cannot pour from an empty cup. Taking care of yourself—whether you are a healthcare provider or a parent to a child with cancer—is important in order to provide the best care and support to others.Parents and families have insights into how to communicate with their kid. Let’s partner with parents to best understand how to talk to their child about a cancer diagnosis—or any hard news. Leveraging the expertise of other healthcare professionals (looking at you, child life specialists, social workers, psychologists! Y’all are the best!) can help to find the best approach for each kid.Today’s Podcast GuestChristine Jurgensen, CEO/Founder, Evan’s Avengers FoundationIn 2016, my son, Evan, was diagnosed with Acute Biphenotypic Leukemia, as he had both Acute Lymphoblastic Leukemia as well as Acute Myeloid Leukemia. For 3 years, Evan had numerous surgeries, pokes, prodding, IVs, blood and platelet transfusions, two bone marrow transplants, graft-versus-host disease (GVHD), infections, and then some. He had so many different chemotherapy medications and total body irradiation, which have saved him. However, they carry current and possible future side effects. I made a promise to my son that I would start Evan’s Avengers Foundation to help fund research to end Childhood Cancer. With more than 12 major types of pediatric cancers and over 100 subtypes, childhood cancer should not be considered rare. Each day, 43 children, more than a classroom, will be diagnosed with some form of cancer and are at risk of a high mortality rate. Many will later suffer from secondary cancer due to medication used to save their lives. The National Cancer Institute receives its budget from the United States Congress as part of the federal budget process through appropriations for the Department of Health and Human Services and the National Institute of Health (NIH). Despite of this, only 4% of federal government cancer research funding goes to study pediatric cancer, that’s just 4¢ on the dollar. We must write our Congressman and plead them to increase this budget. Make some noise with us and #GoGoldforchildren #GoldStrong #GogoldforevansavengersConnect with Evan’s Avengers Foundation:Instagram https://www.instagram.com/evansavengersFacebook https://www.facebook.com/evansavengersfoundation/Website http://www.evansavengers.org/Donate to Evan’s Avengers Foundation http://www.evansavengers.org/donate/----- I host a weekly gathering of PAs like you who believe in creating a beautiful PA life - it's called the Thriving PA Community Hour. It's an opportunity to learn, share, connect, and lift each other up. And you're invited! Get the Zoom link here - I'd love to see you :)Want a deep dive into the science behind the tools in this week's podcast episode? It drops into your email inbox every Sunday at midnight. Want in? I'd love to have you!Worried about burnout? You came to the right PA! Get the Burnout Deep Dive here - a resource-rich pdf that will help unlock your burnout. And I created a complete diagnostic assessment for burnout, you can get it here: How Full is My Cup?Want more evidence-based tools, expert tips, and words of wisdom for creating your beautiful PA life? Check out my Instagram page: @rachel.la.costa
身体的病い・疾患 心理学 衛生・健康的な生活 個人的成功
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