エピソード

  • Limits and Restraint
    2024/08/03

    This week we discuss Limits (things that Chronic/invisible illnesses prevent us from doing) and Restraint (things that we restrain and limit in some ways to do things). How limits and restraint works with chronic conditions and the adjustment that we have had to make in our lives to manage our conditions to live instead of simply function. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    42 分
  • The many faces of Commiseration
    2023/09/09

    Commiseration is something we've touched on before in aspects. In this episode we go over the journey we went through early on. How commiseration looked while we were getting diagnosed versus how it's developed current-day. It manifests in a variety of ways depending on the relationship between people and for the chronically invisible can make all the difference in living with a condition. Our Website: https://www.fantasticpains.com/ Our PAIN-treon!  https://www.patreon.com/FantasticPainsandHowWeHideThem  Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ  ____________________________________________________________________

     chill. by sakura Hz https://soundcloud.com/sakurahertz  Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: http://bit.ly/chill-sakuraHz  Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo  ____________________________________________________________________  You can find us on these sites as well:  Facebook: https://www.facebook.com/FantasticPains  Twitter:https://twitter.com/FantasticPains  Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them  Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ  Spotify: https://open.spotify.com/show/29r3gK6...  TikTok: https://www.tiktok.com/@fantasticpains?lang=en  Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/ 

     

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #medicaltalk #medicalbias #whatismedicalbias #chronicbias #medicalzebra

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    1 時間 15 分
  • Complaining Chaotically!
    2024/07/27

    The Weekly Recap (check-up) evolved into a chaotic, mania-driven venting session. Honestly days to just meet up and complain, vent out those frustrations, are helpful little 'resets'. It's also a flashback of how the early years of the podcast ebbed and flowed conversation-wise.

    Thanks again, Abilify! What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    35 分
  • 8x4 draft
    2024/07/13

    This episode we break into the vast topic of fear -- in a chronic, invisible, or even general medical worlds there's a lot of this. It can range from the fear of not knowing, fear of the future, fear of your symptoms, how your condition might impact your loved ones... What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    55 分
  • Check and Recheck
    2024/07/08

    Record keeping! With things like digital TOS, acceptance screens, medical treatment forms allowing you to be treated by the doctor... there's a lot of blind faith put into these forms and records in general. But sometimes the single situation can be seen in drastically different ways, which is why we find it important to talk about! Thank you Ruth for the suggestion and sharing your experience with us! We've definitely had our own moments of finding out the notes from a visit were written down much differently than the visit we experienced. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    32 分
  • Label THIS!
    2024/06/22

    Labels... they're about as common to find as clouds in the sky are. However the labels and expectations that cling to us as time passes should be examined regularly and updated as needed. Maybe a change in labeling can help someone with their plans for the future. Maybe the labels they were using have become more of a crutch or a detriment, or even revealing to the mindset of biases and times long past. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #

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    46 分
  • Context continued and Season 8!
    2024/06/15

    We continue our Context discussions while ringing in the first episode of SEASON 8!!! What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #

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    47 分
  • Context in the shape of You
    2024/06/02

    Context in the shape of you -- probably an odd way to phrase it, but this episode discusses situations and how the context you have with it changes based on you at that time. The things you've experienced in life shape how you view and approach things. We discuss that and how it changes over the years as you get shaped by your experiences. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website: https://www.fantasticpains.com/ Our PAIN-treon!

    https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ

    ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks

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    1 時間 5 分