In this episode, I try to describe what it feels like to feel isolated with long covid. If you have a chronic illness and sometimes feel alone, this one is for you!

Imagine feeling trapped in an invisible world, where the echoes of long COVID linger long after the rest of the world has seemingly moved on. That's been my reality since January 2022. I talk openly about the mixed bag of reactions I encounter—from those who offer empathy to sceptics who blame everything but the virus itself. Through this episode, I hope to reach others on this difficult journey, reminding them that they're not alone.

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How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the emotional landscapes and societal hurdles that come with my journey of ill health retirement. In our latest conversation, we confront the misconceptions and judgments that arise when trying to live fully while managing a chronic illness. Rachel and I share our honest experiences, from the sting of social media criticism to the struggle of balancing joy and reality.

We also read out two of your messages, which add to the conversation of how to live life with Long Covid.

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What happens when the world moves on, but your body doesn't? From the isolation of feeling misunderstood to the frustration of being dismissed by others, I share my personal journey of living with persistent symptoms. Whether you're personally affected, know someone who is, or simply wish to broaden your understanding, this episode offers an unfiltered glimpse into the daily reality of living with an illness many choose to ignore. Let this conversation be a reminder of the importance of compassion and support for those facing chronic health battles.

Miranda's new book: I Haven’t Been Entirely Honest with You (Audio Download): Miranda Hart, Miranda Hart, Penguin Audio: Amazon.co.uk: Audible Books & Originals

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What happens when you find yourself facing long COVID for the third time, and the dread of uncertainty looms larger than ever? Join me, as I navigate my way through another bout of illness coinciding with my ill-health retirement. I found myself reflecting on the persistent fear of worsening symptoms and the isolation that comes with a healthcare system seemingly moving on from the pandemic.

This episode serves as a reminder of the solidarity we share, with an assurance that solutions will eventually be found.

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Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID, an invisible illness that has forced me to retire prematurely from my role as a vicar. I recorded this on my retirement day, at the age of 52.

Through the lens of my daily struggles with chronic fatigue, discover practical tips that have been pivotal in my symptom management. I discuss the critical role of antihistamines, the importance of pacing your life according to your energy levels, and the benefits of using mobility aids. Hear about strategies like alternating between rest and small tasks, which can help you maintain a sustainable rhythm. This episode is not just about my journey, but also aims to build a community of solidarity and understanding for everyone grappling with this condition. Tune in, and learn how sharing personal experiences can foster mutual support and resilience.

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The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.

This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP. I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.

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What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing that recovery is on the horizon.

Discover how my life took a turn for the better with the addition of a foldable mobility scooter. This three-wheeled e-folding explorer has been a game-changer, offering newfound independence and freedom. I'll explain how it has outperformed my traditional powered wheelchair, enabling me to navigate curbs and rough terrain easily. Plus, I share the joy of customising and using it, especially for those daunting hospital visits. We'll also reflect on the critical role of a robust support system, whether it's family, friends, or simply knowing you're not alone.

https://efoldi.com/index.html - I have the explorer model.

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What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope to the crushing reality of isolation, listen to how this invisible illness has not only impacted me but also created a rift in my family's daily existence.

Finally, I offer a message of resilience and hope, reminding us all that feeling stuck is not permanent. Let's draw strength from one another and look forward to a future full of promise and connection.

If you are feeling alone and isolated, this episode is for you!

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