In this powerful episode, we explore the true meaning of patient engagement—beyond buzzwords and box-ticking—and dive into why it’s critical for better health outcomes and a stronger healthcare system. Host Lisbeth welcomes guest Vera Gomes, a passionate patient advocate and president of a Portuguese NGO for people living with inflammatory bowel disease.
Together, they discuss: The difference between patient involvement and patient engagement. How engagement transforms healthcare from passive to collaborative. The real impact on treatment adherence, confidence, and quality of life. The barriers patients face, including inaccessible information, cultural divides, and healthcare power dynamics.
Vera also shares her personal journey and the role of advocacy in empowering those whose voices often go unheard.
If you're a healthcare professional, policymaker, or patient looking to understand how we can build a more inclusive, effective healthcare system—this episode is a must-listen.
Tune in now to be part of the change.
Chapters - (00:00:05) - PICC Lounge Podcast
- (00:01:07) - Patient Advocates for inflammatory bowel diseases
- (00:01:58) - What does patient engagement mean in healthcare?
- (00:04:10) - Patient Involvement and Patient Engagement
- (00:06:49) - Patient Advocates: What is Patient Engagement?
- (00:09:01) - Patient Engagement in the Healthcare System
- (00:15:26) - What barrier do patients face when they want to be involved in a
- (00:19:18) - Patient advocacy and the future of healthcare
- (00:22:50) - 3 Questionnaires
- (00:24:40) - Favorite dish for people with inflammatory bowel disease
- (00:26:15) - What Quotes Have Inspired You?