In this episode, we speak with Natasha Trehan, a Canadian undergraduate student and passionate advocate for youth and young adults living with inflammatory arthritis and other chronic conditions. Natasha shares her personal journey from diagnosis to finding her own voice and becoming a voice for others, emphasizing the importance of shared decision-making in health care and treatment. She discusses the challenges of balancing medication goals with personal life goals, the significance of self-advocacy, and how her organization, Take a Pain Check, empowers young people with rheumatic diseases. Join us as Natasha reveals her strategies for maintaining hope in achieving low disease activity, and inspiring others on their path to achieving better health outcomes.

Contact Our Host

Adam Kegley, Associate Director, Global Partnerships at GHLF: akegley@ghlf.org

A podcast series produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

Remission Possible is a podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and this episode was made possible with support from AbbVie.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

In this audio guide, Dr. Ogdie and Dr. Mease discuss uncontrolled disease in psoriatic arthritis (PsA) and axial spondyloarthritis (axSpA) and provide practical advice on collaborating with your doctor to ensure you achieve the best possible disease control. This guide is designed to give patients the knowledge they need to better navigate their treatment journey and feel their very best.

Meet the Team

Host: Angela Degrassi, Senior Manager of Patient-Centered Research Operations & Engagement at GHLF.

A podcast episode produced by Ben Blanc, Associate Director of Digital Production and Engagement at GHLF.

These episodes of Remission Possible are produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie.

Our podcasts and audio guides are for educational purposes only and shouldn’t take the place of medical advice. The statements of the health care professionals are based on the personal clinical experiences of the physicians. Always talk to your own doctor about the right path for you.

AbbVie Inc. in partnership with GHLF are the sole authors and copyright owners of this presentation. AbbVie and GHLF are solely responsible for all written and oral content within this presentation. © 2024 AbbVie Inc. All rights reserved.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

Join us for a timely discussion on the importance of achieving optimal disease control for people living with psoriatic arthritis (PsA) or axial spondyloarthritis (axSpA). We’ll talk with leading rheumatologists Dr. Mease and Dr. Ogdie, who will be presenting research on this topic at this year’s European Alliance for Associations for Rheumatologist (EULAR). They will discuss the real-world burden of uncontrolled disease despite treatment with tumor necrosis factor inhibitors.

Plus, hear from a patient with PsA who shares how switching to another therapy helped improve her condition.

This episode provides patient and provider tips on best practices for shared decision-making so you or someone you love can best manage PsA or axSpA.

Meet the Team

Host: Angela Degrassi, Senior Manager of Patient-Centered Research Operations & Engagement at GHLF.

A podcast episode produced by Ben Blanc, Associate Director of Digital Production and Engagement at GHLF.

These episodes of Remission Possible are produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie.

Our podcasts and audio guides are for educational purposes only and shouldn’t take the place of medical advice. The statements of the health care professionals are based on the personal clinical experiences of the physicians. Always talk to your own doctor about the right path for you.

AbbVie Inc. in partnership with GHLF are the sole authors and copyright owners of this presentation. AbbVie and GHLF are solely responsible for all written and oral content within this presentation. © 2024 AbbVie Inc. All rights reserved.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

Rheumatologist Dr. Irene Blanco is the Director of Lupus Clinical Services at Northwestern in Chicago, Illinois. At Northwestern Medicine, her research interests focus on health outcomes, health disparities, and adverse social determinants of health in rheumatology, particularly in systemic lupus erythematosus.

Join Dr. Blanco as she sheds light on how for a long time there were different definitions of what lupus looks like, and how it is now more defined. Listen as she talks about how lupus can manifest differently in each patient, the key lab numbers patients should be aware of, and the importance of working together with your doctor to reach remission.

Among the highlights in this episode:

02:33: Dr. Irene Blanco shares her personal and professional journey in focusing on lupus, influenced by her aunt's experience and her exposure to lupus in medical school

04:25: Dr. Blanco discusses the lack of awareness and understanding of lupus among patients and communities

06:34: Dr. Blanco explains the concept of remission and low disease activity in lupus, shedding a light on the importance of setting clear standards and targets for lupus treatment

09:55: Dr. Blanco outlines specific measures used to assess remission in lupus patients, including the SLEDAI score and stable immunosuppression

12:16: Dr. Blanco advises patients to become familiar with their lab numbers and to communicate changes in their health to their doctors

14:46: Dr. Blanco shares findings from her research on health disparities affecting lupus patients, particularly those from minority and low-income backgrounds

17:45: Dr. Blanco discusses the need to train health care providers to address the psychosocial issues faced by lupus patients

19:20: Dr. Blanco explains how she and her team proactively address patients' social determinants of health and coordinate multidisciplinary care

22:06: Dr. Blanco emphasizes the importance of not giving up and seeking support

Contact Our Host

Adam Kegley, Associate Director, Global Partnerships at GHLF: akegley@ghlf.org

A podcast series produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

Remission Possible is a podcast series produced by the non-profit Global Healthy Living Foundation and its arthritis patient community CreakyJoints. This episode was made possible with support from AstraZeneca.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

After qualifying for the Olympic trials twice, Racquel’s diagnosis of systemic lupus erythematosus in 2004 presented challenges that got in the way of her athletic lifestyle. Wanting no one else to feel alone in their journey, Racquel founded Lupus in Color, an advocacy group dedicated to supporting people living with lupus.

Join Racquel as she describes recognizing symptoms, feeling lost and scared at diagnosis, working with her doctor to care for her lupus, and becoming an advocate for herself and others living with lupus.

Among the highlights in this episode:

02:18: Racquel Dozier shares her initial diagnosis with rheumatoid arthritis in 2002 and her subsequent diagnosis with lupus in 2004

03:21: Racquel details her severe symptoms and the proactive approach of her doctor in diagnosing lupus

04:44: Racquel explains how her feelings of isolation and lack of support led her to create Lupus in Color, an online and local support group that has grown into an international organization

07:25: Racquel discusses the importance of self-advocacy and building a strong relationship with her doctor

09:30: Racquel and Adam Kegley, Associate Director of Global Partnerships at GHLF, discuss the importance of trust, honesty, and collaboration in the doctor-patient relationship

12:11: Racquel describes her approach to managing lupus, focusing on the concept of "silencing" lupus and shares about the importance of understanding personal triggers and maintaining a balanced lifestyle is emphasized

14:30: Racquel offers practical advice for coping with lupus on a day-to-day basis, including keeping a journal and making incremental changes to diet, exercise, and mental health practices

16:42: Racquel discusses the need for patience and the evolving nature of lupus and its treatments

Contact Our Host

Adam Kegley, Associate Director, Global Partnerships at GHLF: akegley@ghlf.org

A podcast series produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

Remission Possible is a podcast series produced by the non-profit Global Healthy Living Foundation and its arthritis patient community CreakyJoints. This episode was made possible with support from AstraZeneca.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

In our third episode, Dr. Mease defines remission/inactive disease and low disease activity in patients with rheumatoid arthritis, psoriatic arthritis, and axial spondyloarthritis. He emphasizes the importance of incorporating personal goals and experiences into the treatment plan, as well as the role of education and shared discussion between the patient and physician.

Remission Possible is a new podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

In our second episode, Jed, an ankylosing spondylitis patient and advocate, describes his diagnosis at a young age, the lack of treatment options available at that time, and his journey to becoming an advocate for himself and for the arthritis community.

Remission Possible is a new podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.

Join Nathalie as she takes us on her personal journey with rheumatoid arthritis (RA). Discover how she advocates for quality care and finds joy in maintaining an active lifestyle while living with a chronic illness.

Remission Possible is a new podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie.

Learn more at ghlf.org/remission-possible/

See omnystudio.com/listener for privacy information.