エピソード

  • Coping with transport | "Belle"
    2024/11/13

    Mark welcomes back former guest "Belle", as they discuss the perils of transport. "Belle" has two neurodivergent children - a 9-year old girl (diagnosed autistic with sensory processing disorder and a PDA profile), and a 7-year old boy (diagnosed autistic with Tourette Syndrome and suspected ADHD). Alongside Mark's three neurodivergent kids (with a giddy blend of autism, ADHD, anxiety and PDA), they have a trove of transport-related horror stories to tell.

    As well as discussing tales of travelling on buses, planes, trains, boats and cars, there are also more Neurodiversity Champions, Tiny Epic Wins and What The Flip moments, as well a particularly insightful proposal to create a demand-avoidant sat nav.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Gatwick Airport Special Assistance - https://www.gatwickairport.com/passenger-guides/special-assistance.html

    Ferry cabins (DFDS) - https://www.dfds.com/en-gb/passenger-ferries/onboard/newhaven-dieppe/sleeping

    Jen Marillat, Dramatherapist - https://jenmarillat.com/

    Health and Care Professions Council - https://www.hcpc-uk.org/

    The British Association of Dramatherapists - https://www.badth.org.uk/

    EMDR Therapy - https://www.bacp.co.uk/about-therapy/types-of-therapy/eye-movement-desensitisation-and-reprocessing-emdr

    Riding For the Disabled Association (RDA) - https://rda.org.uk/

    Aspens, East Sussex - https://www.aspens.org.uk/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    TikTok:https: www.tiktok.com/@neuroshamblespod

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 13 分
  • Judgement From Outsiders | Lisa Lloyd (@asd_with_a_g_and_t)
    2024/10/30

    Mark chats to the magnificent Lisa Lloyd about the judgement they regularly receive from outsiders as parents of neurodivergent kids. Lisa has two children - an 11-year old boy (diagnosed autistic) and a 7-year old girl (diagnosed autistic, with a PDA profile) and, as a prominent content creator on social media (@asd_with_a_g_and_t), she is no stranger to being judged by people who don't have a neurodivergent child, much less a clue about how to raise one.

    Mark and Lisa swap tales about comments they receive from people judging their children ("He's not autistic, he's just naughty"), judging their parenting ("He wouldn't act like that if he was my son") and judging the entire concept of neurodivergency ("It's just a label"). They discuss the misconceptions that cause people to act this way, as well as the appropriate responses you can give them in return.

    This is a great one to listen to if you've ever been told that "He doesn't look autistic" or "Everyone's a bit on the spectrum".

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Raising the Sen-Betweeners, Lisa Lloyd - https://amzn.eu/d/4hm6Sb0

    SEND Reform England - https://www.sendreformengland.com/

    Lisa Lloyd Instagram - https://www.instagram.com/asd_with_a_g_and_t/

    Lisa Lloyd TikTok - https://www.tiktok.com/@asd.with.a.g.and.t

    Lisa Lloyd Facebook - https://www.facebook.com/ASDwithGandT

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    TikTok:https: www.tiktok.com/@neuroshamblespod

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 15 分
  • Keeping up with the Joneses | Samuel Wilson
    2024/10/16

    Mark discusses the innate human desire to "keep up with the Joneses" with returning guest Samuel Wilson, who is an author and parent of two children: an 8-year old daughter (on the autism pathway, with Cerebral Palsy, Cerebral Visual Impairment and Sensory Processing Disorder) and a 5-year old son (suspected neurotypical).

    They discuss how unhelpful that can be in the early days of your diagnosis journey and how liberating it is when you finally let go of the expectations of being "normal" and embrace your family in all of their neuroshambolic glory.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Simpsons clip - https://www.youtube.com/watch?v=784seqWxsMk&t=469s

    Dad La Soul - https://www.dadlasoul.com/

    BBC Woman’s Hour - https://www.bbc.co.uk/sounds/play/m0022ss7

    India Croc replacement saga - https://www.instagram.com/p/C9hLMewpBH6/

    "Lend a Hand", Samuel Wilson's book - www.littlestepspublishing.co.uk/books/lend-a-hand

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 7 分
  • Am I raising an arsehole? | Kate Ebbutt
    2024/10/02

    A potentially controversial episode, this one, where Mark chats to an old friend, Kate Ebbutt (Mum to 11 year-old neurotypical and 9-year old diagnosed ADHD/suspected autistic humans). They talk candidly about something they've both found themselves worrying about in their darker moments - am I raising an arsehole? They dissect the behaviours that qualify someone as being "an arsehole" and discuss to what extent they can be fairly applied to our neurodivergent kids.

    They also discuss to what extent the gentle parenting approach could be contributing to this behaviour, as well as recounting experiences of times where they've had to explain their parenting choices to neurotypicals who struggle to understand their approach.

    Please note, if you are offended by the word arsehole, it is sprinkled liberally throughout the episode, so this one might not be for you.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    "The Explosive Child" book - https://drrossgreene.com/the-explosive-child.htm

    Gentle Parenting - https://www.parents.com/parenting/better-parenting/style/what-is-gentle-parenting/

    National Trust - https://www.nationaltrust.org.uk/

    RAM (Random Access Memory) - https://www.ign.com/articles/what-is-ram

    Sheffield Queer Parents - https://sites.google.com/view/sheffield-queer-parents

    Angling 4 Education - https://www.angling4education.com/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 11 分
  • Conversation | Kieran Rose
    2024/09/18

    Mark chats to the inspirational Kieran Rose. As well as being autistic/ADHD himself, Kieran has three autistic/ADHD children (11, 14 and 15) as well as an autistic wife.

    Kieran is an author, academic, trainer, consultant and all round font of knowledge on autism, so this episode contains some fascinating insights into the different communication styles between neurodivergents and neurotypicals when having a conversation.

    As well as topics such as situational mutism, hyperverbalism and monotropism, Mark and Kieran swap tales about the fact they're never able to finish a conversation without being interrupted and discuss the perils of group conversation and their very different takes on the ridiculous neurotypical habit of engaging in small talk.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Neurodive Podcast - https://soundcloud.com/neurodivepod/kieranrose

    Kieran's website - https://theautisticadvocate.com/

    Maori word for autism - https://www.bbc.co.uk/news/blogs-news-from-elsewhere-40493398

    KIERAN'S RECOMMENDATIONS FOR FURTHER READING:

    A short (and very inexhaustive) list of Autistic advocates and allies no longer with us, who have made a phenomenally constructive difference to the narratives around Autistic and Neurodivergent people, but who never get the recognition of lauded non-Autistic people: Jim Sinclair Don't mourn for us - Jim Sinclair wrote one of the pivotal texts in the reframing of Autistic experience (opens as a PDF): https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=https://philosophy.ucsc.edu/SinclairDontMournForUs.pdf&ved=2ahUKEwik86zq-smIAxWCWUEAHQ2NH5UQFnoECCQQAQ&usg=AOvVaw3WfDEINrbr2olYTgiO6ZKl A book about Jim: https://amzn.eu/d/3qalj4l Donna Williams Conceptualised a model of advocacy based on an inside-out approach - that observation based on your own or a normative experience can only take you so far. https://en.m.wikipedia.org/wiki/Donna_Williams She produced a massive number of books: https://uk.jkp.com/collections/author-donna-williams-pid-199891 Mel Baggs: https://en.m.wikipedia.org/wiki/Mel_Baggs An old (quality is indicative of its age, so please bear with it) video on two parts that off a deep challenge to normative assumptions around communication and experience: https://youtu.be/JnylM1hI2jc?si=IaPhwkiYn1vRmmlp Dinah Murray https://en.m.wikipedia.org/wiki/Dinah_Murray Co-creator of the theory of monotropism: https://journals.sagepub.com/doi/abs/10.1177/1362361305051398 A basic introduction: https://youtu.be/qUFDAevkd3E?si=SMiSDEoiNcDtV2eg Steve Silberman https://en.m.wikipedia.org/wiki/Steve_Silberman The author of Neurotribes, a game changing book that brought a model of different, not less into the mainstream: https://amzn.eu/d/clw0AD8

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 23 分
  • Food, laborious food | Dee McMahon
    2024/09/04

    Kicking off season 2 of Neuroshambles, Mark chats to the wonderful Dee McMahon who also has three neurodivergent children: a 16-year old boy, (diagnosed Autistic/ADHD with anxiety disorder) a 13-year old girl (diagnosed ADHD with Dyslexia/Dyscalculia) and a 9-year old boy (diagnosed Autistic with ARFID).

    Mark and Dee take a deep dive into the soul crushing nightmare of trying to feed their neurodifferent kids something remotely resembling a balanced diet. From the trauma of putting together meal plans and shopping lists, to the sense of nervous trepidation when trying to introduce their kids to new foods and the wounded pride they experience when food they've slaved away at is dismissed without even being tried.

    They also take an in-depth look at the more serious side of food issues, when they discuss Dee's personal account of her boy's recent diagnosis of ARFID (Avoidant Restrictive Food Intake Disorder).

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    ARFID - https://en.wikipedia.org/wiki/Avoidant/restrictive_food_intake_disorder

    ARFID Community Facebook Group - www.facebook.com/groups/arfid/

    mASCot website: https://www.asc-mascot.com/

    mASCot Facebook group: https://www.facebook.com/groups/221337174595596/

    To make a donation to mASCot, so they can continue their amazing work: https://www.givey.com/mascot

    Evelina Clinic, London - www.evelinalondon.nhs.uk

    Sainsbury's pasta stars - https://www.sainsburys.co.uk/gol-ui/product/sainsburys-stars-500g?

    Spruce tips - www.foragerchef.com/spruce-tips/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 34 分
  • Trying to take a bloody photo | Claire Quigley Ward
    2024/07/03

    In the final episode of this season, Mark chats with Claire Quigley Ward, who is an ADHD Coach and host of the All Aboard ADHD podcast. As well as being diagnosed ADHD herself, Claire has two neurodivergent children - a 13-year old boy (diagnosed ADHD) and an 8-year old girl (suspected ADHD with PDA traits). They discuss the absolute nightmare of trying to take a "normal" photo of our kids - from the challenges of getting them to stay still and not be distracted, to their inability to pose for the camera and the inevitable dread of seeing how they stand out for all the wrong reasons in the annual school photo.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    All Aboard ADHD podcast - https://www.allaboardadhd.com/podcast

    All Aboard ADHD coaching - https://www.allaboardadhd.com/coaching

    Apple Live Photo feature - https://support.apple.com/en-gb/104966

    Google Best Take feature - https://blog.google/products/photos/how-google-photos-best-take-works/

    SenLife App - https://mysenlife.com/

    Kate Peers - https://www.independent.co.uk/voices/adhd-children-diagnosis-special-needs-school-funding-a9163761.html

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 15 分
  • Siblings | Jess Cain
    2024/06/19

    Mark speaks to the wonderful Jess Cain - a prolific advocate for neurodivergent families and the driving force of Send Family Instincts. She is an autistic/ADHD/PDA lone parent of five children: a 15-year old boy (self-diagnosed autistic/PDA), another 15-year old boy (fostered, with SEMH needs), a 12-year old girl (self-diagnosed autistic) and twin 9-year old boys (one diagnosed autistic/ADHD/PDA and one allegedly neurotypical). In short, there is no-one better to explore this week's topic with, which is how on earth parents of neurodivergent kids juggle the competing needs of siblings. Mark and Jess share anecdotes about the difficulties they face when trying to balance the wildly different needs of all of their children, whilst somehow trying to remain positive and upbeat. From avoiding conflict, the importance of discussing everyone's needs openly, and learning how to prioritise their own needs in the midst of the mayhem.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Send Family Instincts Instagram - https://www.instagram.com/sendfamilyinstincts/

    Send Family Instincts Facebook - https://www.facebook.com/SendFamilyInstincts/

    Send Family Instincts website - https://sendfamilymagic.mykajabi.com/

    Eliza Fricker - https://www.instagram.com/elizafricker_missingthemark/

    Charlie Gray (My Neurodivergent Adventure) - https://myneurodivergentadventure.co.uk/

    Laura Kerbey (P-AST) - https://p-ast.co.uk/

    Brighton Fringe (Neurodiverse Performer Award) - https://www.brightonfringe.org/brighton-fringe-awards-ceremony/

    Sara Jane Harvey (Agony Autie) - https://www.instagram.com/agonyautie/ CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 19 分